Patient Experience Research

KEY FINDING: The co-design process led to the development of four personalized mobility programs: cognitive cardio class, functional strength class, mobility circuit group, and an open gym.

KEY FINDING: Nursing staff found it difficult to truly listen to patients' perspectives, struggling to set aside other tasks and be fully present in conversations.

KEY FINDING: Communication, consistency and connection were key factors that could enhance engagement in pediatric telerehabilitation and reduce barriers to care.

KEY FINDING: Health problems predicted healthcare utilization, while activity limitation and participation restriction predicted healthcare services satisfaction.

KEY FINDING: CIC is the preferred method for bladder emptying, especially among individuals with thoracic and lumbar SCI.

KEY FINDING: General online searches for spinal cord injury treatment yield very few articles that mention upper extremity surgery.

KEY FINDING: Clinicians identified that emotional health and social participation were the most important areas to assess using SCI-QOL during inpatient care.

KEY FINDING: The study found that ‘Your injury’ (personalized, injury-specific information) was ranked as the most important theme for online educational resources.

KEY FINDING: Participants expressed concerns about bone health and fractures, which limited activities and participation for some.

KEY FINDING: The study found that it is possible to work with individuals with DCM to create word clouds for the AO Spine RECODE-DCM study.