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  4. Upper Extremity Surgery in Tetraplegia and the Online Information Void

Upper Extremity Surgery in Tetraplegia and the Online Information Void

HAND, 2021 · DOI: 10.1177/1558944719878835 · Published: September 1, 2021

Spinal Cord InjuryPatient ExperienceSurgery

Simple Explanation

This study investigates the availability and quality of online information regarding upper extremity surgery for tetraplegia, from a patient's perspective. The research highlights a gap in easily accessible online resources that discuss surgical options for improving upper limb function in individuals with tetraplegia. General online searches often exclude discussions of upper limb reconstruction, meaning that patients and caregivers may not be aware of these surgical options. Unless patients have baseline knowledge of tendon or nerve transfers, they are unlikely to find information through self-initiated searches. The study suggests that improving the online dialogue to include upper extremity surgery as a fundamental part of tetraplegia care is crucial. By making online content more available, visible, and readable, patients can be better informed and participate more actively in their care.

Study Duration
1 year
Participants
Not specified
Evidence Level
Not specified

Key Findings

  • 1
    General online searches for spinal cord injury treatment yield very few articles that mention upper extremity surgery.
  • 2
    Using more specific keywords, such as "hand surgery tetraplegia," significantly increases the number of relevant articles discussing tendon/nerve transfers.
  • 3
    Many of the articles found through specific searches are scholarly articles intended for professional audiences, limiting their accessibility to the average patient.

Research Summary

The study evaluates online content regarding surgical options for improving upper extremity function in tetraplegic patients. It highlights the underutilization of reconstructive surgery due to a lack of patient awareness. The research reveals that general online information on tetraplegia often excludes discussions of upper limb reconstruction. Patients are unlikely to discover surgical options through self-initiated searches without prior knowledge. The study suggests improving online content availability, visibility, and readability to better inform patients about surgical options. This can lead to more active participation in their care and better outcomes.

Practical Implications

Improve Online Content

Revise online information to include upper extremity surgery as a standard component of tetraplegia care.

Enhance Website Navigation

Feature standard-of-care procedures prominently on rehabilitation center websites to minimize navigation fatigue.

Increase Health Literacy

Present online materials in language appropriate for lay readers, considering the average reading level of adults.

Study Limitations

  • 1
    The study relies on search results from Google and Yahoo's Bing search engines only.
  • 2
    The reading level analysis was based on the Flesch-Kincaid test.
  • 3
    The study does not include direct surveys or interviews with tetraplegic patients to assess their actual online information-seeking experiences.

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