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  4. Integrating Spinal Cord Injury – Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures

Integrating Spinal Cord Injury – Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures

The Journal of Spinal Cord Medicine, 2021 · DOI: 10.1080/10790268.2020.1712893 · Published: January 1, 2021

Spinal Cord InjuryPatient ExperienceRehabilitation

Simple Explanation

This study focuses on how to integrate a tool called SCI-QOL, which measures the quality of life for people with spinal cord injuries, into their rehabilitation care in the hospital. The researchers talked to clinicians to find out what makes it hard or easy to use SCI-QOL, and then came up with a plan to make it easier to use. The goal is to make sure that the tool is used in a way that helps patients and fits well into the way the hospital works.

Study Duration
Not specified
Participants
59 clinicians
Evidence Level
Not specified

Key Findings

  • 1
    Clinicians identified that emotional health and social participation were the most important areas to assess using SCI-QOL during inpatient care.
  • 2
    The study found that clinicians preferred administering SCI-QOL two weeks after admission, four weeks after admission, and three days before final discharge.
  • 3
    The assessment champions recommended distribution of results to the attending physician, the SCI-QOL administrator, nursing and allied health managers, social workers, and staff psychologists.

Research Summary

This study describes a development strategy for integrating the Spinal Cord Injury – Quality of Life (SCI-QOL) item banks into inpatient spinal cord injury (SCI) rehabilitation and recommendations for protocol implementation. Clinicians acknowledge the value of patient-reported outcome measures in inpatient SCI rehabilitation, but noted barriers to adoption. Engaging clinicians in the decision-making process for developing an implementation and administration protocol can inform strategies to overcome barriers and emphasize supports.

Practical Implications

Improved PROM Implementation

Engaging clinicians in the implementation process can improve the adoption of patient-reported outcome measures.

Targeted SCI-QOL Assessment

Focusing on emotional health and social participation domains during inpatient care can address key patient concerns.

Structured Administration Schedule

Administering SCI-QOL at specific intervals (2 weeks post-admission, 4 weeks post-admission, and 3 days pre-discharge) allows for tracking changes in patient-reported outcomes.

Study Limitations

  • 1
    The implementation strategy reflects the preferences of clinicians at one hospital.
  • 2
    The study does not incorporate the perspectives or feedback of patients.
  • 3
    Inconsistent and limited representation of rehabilitation disciplines during assessment champion meetings.

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