Spinal Cord Research Help
AboutCategoriesLatest ResearchContact
Subscribe
Spinal Cord Research Help

Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

Quick Links

  • Home
  • About
  • Categories
  • Latest Research
  • Disclaimer

Contact

  • Contact Us
© 2025 Spinal Cord Research Help

All rights reserved.

  1. Home
  2. Categories
  3. Patient Experience

Patient Experience Research

Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.

Showing 121-130 of 130 results

Patient ExperienceNeurologyRehabilitation

Health and Functional Literacy in Physical Rehabilitation Patients

HLRP: Health Literacy Research and Practice, 2017 • April 27, 2017

This was the first study to evaluate health literacy, functional literacy, fluid cognitive function, and self-reported health in physical rehabilitation populations. The stroke group had the lowest le...

KEY FINDING: Higher health literacy was associated with better mobility, less anxiety, and better overall health.

Read Summary
Spinal Cord InjuryPatient ExperienceHealthcare

Communication with general practitioners: a survey of spinal cord injury physicians’ perspectives

Spinal Cord Series and Cases, 2019 • April 20, 2019

The study assessed SCI specialists’ communication with GPs, identifying factors that influence these interactions. Results indicated that most SCI specialists desire improved communication with GPs, b...

KEY FINDING: A majority of SCI specialists (61.8%) reported routinely communicating with GPs, but most (53.4%) rated the communication as only “fair”.

Read Summary
Spinal Cord InjuryPatient ExperienceNeurology

Risk-benefit value of upper extremity function by an implanted electrical stimulation device targeting chronic cervical spinal cord injury

Spinal Cord Series and Cases, 2019 • July 9, 2019

This study used a survey to assess the value people with tetraplegia place on potential benefits and risks of an implanted neuroprosthetic device (NNP) for upper extremity function. The results indica...

KEY FINDING: More than 70% of participants rated improvements in arm/hand function as “very important” to regain.

Read Summary
Spinal Cord InjuryPatient ExperienceEducation

SCI-U: E-learning for patient education in spinal cord injury rehabilitation

The Journal of Spinal Cord Medicine, 2012 • January 1, 2012

The aim of this project was to pilot the development of an online patient education resource. This involved the design both of the online courses themselves and of the process used to develop them. Fo...

KEY FINDING: Five courses were created, each featuring more than 45 minutes of video content and hundreds of media assets. Preliminary evaluation results indicate that users were satisfied by the courses and perceived them to be effective.

Read Summary
Spinal Cord InjuryParticipationPatient Experience

Impact of impairment and secondary health conditions on health preference among Canadians with chronic spinal cord injury

The Journal of Spinal Cord Medicine, 2012 • September 1, 2012

This study investigated the impact of secondary health conditions on health preference among Canadians with chronic SCI. The research found a strong negative association between high-impact secondary ...

KEY FINDING: The mean HUI-Mark III score for the SCI sample was 0.27, significantly lower than that of the general population.

Read Summary
Patient ExperienceRehabilitationPublic Health

Conversational analysis of medical discourse in rehabilitation: A study in Korea

The Journal of Spinal Cord Medicine, 2013 • January 1, 2013

This study analyzes physician-patient communication in Korean rehabilitation settings, revealing a lack of empathic communication from physicians and passive communicative behaviors from patients. The...

KEY FINDING: Physicians demonstrated interruptive behaviors more often than patient-centered behaviors.

Read Summary
Patient ExperienceNeurologyRehabilitation

The meaning of self-care in persons with cervical spinal cord injury in Japan: a qualitative study

BMC Neurology, 2013 • September 4, 2013

This study explored the meaning of self-care among individuals with cervical spinal cord injury (CSCI) in Japan, revealing a shift from a focus on activities of daily living (ADLs) to self-management ...

KEY FINDING: Rehabilitation programs in Japan primarily focus on improving physical functions for daily living activities (ADLs) but often lack comprehensive health education.

Read Summary
Spinal Cord InjuryPatient ExperienceResearch Methodology & Design

Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study

BMC Neurology, 2014 • March 13, 2014

This study investigates the facilitators and barriers to self-management among individuals with traumatic SCI, incorporating perspectives from patients, caregivers, and healthcare managers. The resear...

KEY FINDING: Physical and emotional support from caregivers significantly contribute to the well-being and self-management of individuals with traumatic SCI.

Read Summary
Spinal Cord InjuryPatient ExperiencePublic Health

Evaluation of a Community Reintegration Outpatient Program Service for Community-Dwelling Persons with Spinal Cord Injury

Rehabilitation Research and Practice, 2014 • December 9, 2014

The study evaluated the effectiveness of a community reintegration outpatient (CROP) service for promoting well-being and community participation following spinal cord injury (SCI). The CROP service i...

KEY FINDING: Self-efficacy (MSES) and positive affect (PANAS) improved from baseline to exit (𝑃< .05), but the changes were not maintained at follow-up.

Read Summary
Patient ExperienceSurgeryMusculoskeletal Medicine

One-Year Clinical Outcomes of Minimal-Invasive Dorsal Percutaneous Fixation of Thoracolumbar Spine Fractures

Medicina, 2022 • April 27, 2022

This study evaluated the clinical outcomes of minimal-invasive percutaneous dorsal screw-rod system for thoracolumbar fracture stabilization, focusing on patient-reported outcome measures (PROMs) and ...

KEY FINDING: Minimal-invasive stabilization of thoracolumbar fractures utilizing a dorsal percutaneous approach resulted in significant PROM outcome improvements for up to 1 year of follow-up.

Read Summary
Previous
1...111213