Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 31-40 of 130 results
PLoS ONE, 2024 • April 29, 2024
The study aimed to explore seriously injured rugby players’ perspectives on PPI in pre-clinical spinal cord research with specific objectives to (1) establish participants’ knowledge/experience of PPI...
KEY FINDING: People affected by spinal cord injury desire further involvement in pre-clinical research through dialogue and contact with researchers.
Frontiers in Rehabilitation Sciences, 2024 • April 29, 2024
This study qualitatively examined peer interactions within an online self-management program for individuals with spinal cord injury (SCI). The analysis revealed themes of resource sharing, skill-buil...
KEY FINDING: Participants engaged in skill-building, resource sharing, and problem-solving within the online forum.
American Journal of Physical Medicine & Rehabilitation, 2025 • February 1, 2025
This retrospective cohort study examined the association between the level of consent to the Rick Hansen Spinal Cord Injury Registry (RHSCIR) and patient outcomes after traumatic spinal cord injury (T...
KEY FINDING: Participants who declined community follow-up interviews but accepted minimal data collection had significantly longer acute length of stay compared to those who provided full consent.
OTJR: Occupational Therapy Journal of Research, 2025 • January 1, 2024
This study sought to understand the experiences of participants who completed the SCISM program through qualitative analysis of semi-structured interviews after program completion. Participant’s respo...
KEY FINDING: Participants felt that the SCISM Program provided them with a sense of community that may be lacking in their physical environment or via social media.
Health Expectations, 2024 • June 19, 2024
This study aimed to develop key principles for PPI in preclinical spinal cord research to support researchers in conducting evidence‐informed PPI. Using a modified Delphi method, consensus was reached...
KEY FINDING: Consensus (> 75% agreement) was reached for a total of 27 principles, with 13 rated as essential and 14 rated as desirable.
Front. Rehabil. Sci., 2024 • July 16, 2024
The project successfully co-developed and disseminated a series of nine educational podcasts and related EATs, titled “The Bare Bones Podcast Series,” to educate individuals with SCI/D about bone heal...
KEY FINDING: Nine podcast episodes and related Educational Action Planning Tools (EATs) were co-developed with PLEX partners, reviewers, and expert panel members.
Health Expectations, 2024 • January 1, 2024
This study explored the perspectives of preclinical researchers and clinicians on PPI in preclinical spinal cord research, noting its potential benefits for research and researchers. Participants iden...
KEY FINDING: Participants believed that individuals affected by SCI have a right to be involved in research concerning their condition.
DIGITAL HEALTH, 2024 • July 9, 2024
The study evaluated the Parkwood VIP4SCI platform, a virtual e-health solution designed to improve self-management skills for individuals with spinal cord injury (SCI) during care transitions. Results...
KEY FINDING: The VIP4SCI platform was seen as usable and feasible by both patients and clinicians, with platform satisfaction scores ranging from +0.9 to +2.5 on a −3 to +3 scale.
Healthcare, 2024 • August 6, 2024
This cross-sectional study investigated the relationship between perceived relational empathy, resilience, and various clinical and demographic variables in adult SCI patients at discharge from intens...
KEY FINDING: Perceived relational empathy was positively associated with resilience, suggesting that patients who felt more understood by their doctors exhibited greater resilience.
BMC Musculoskeletal Disorders, 2024 • September 23, 2024
This study validated the structural validity of the BARQ-R using Rasch analysis in community-dwelling adults with and without musculoskeletal pain in the US, and validated previous Rasch analysis resu...
KEY FINDING: The 9-item Rasch-based BARQ-R had no misfitting items after rescoring 1 item and deleting 3 items in community-dwelling adults with and without musculoskeletal pain.