Patient Experience Research

KEY FINDING: All items on the questionnaires were endorsed by more than 10% of the participants, suggesting that the items represent recognizable urinary symptoms.

KEY FINDING: Learning self-care skills was mainly achieved through experience, challenging oneself, and utilizing opportunities provided by the rehabilitation team.

KEY FINDING: The HL level was inadequate in 32.5%, problematic-limited in 40.3%, sufficient in 19.5%, and excellent in 7.8% of the patients.

KEY FINDING: Older age and higher lesion level indicated more severe physical function impairments.

KEY FINDING: Participants demonstrated moderate levels of eHealth literacy (31.6 out of 40) and general health literacy (17.6 out of 20).

KEY FINDING: Participants developed and followed consistent routines and habits to manage their medical health complications and facilitate participation in daily activities.

KEY FINDING: Participants expected the app to improve psychological, physical, and behavioral health outcomes, including reducing anxiety and promoting physical activity.

KEY FINDING: Identified factors influencing patient engagement in SCI/D rehabilitation, such as therapist training and patient adjustment to new disabilities.

KEY FINDING: Callers were generally satisfied with the telerehabilitation service and found it usable, corroborating pre-pandemic literature.

KEY FINDING: Participants experienced negative emotions such as anger, stress, frustration, and sadness, leading to depression after sustaining a spinal cord injury.