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Designing accessible educational resources for people living with spinal cord injury

The Journal of Spinal Cord Medicine, 2022 · DOI: 10.1080/10790268.2020.1808772 · Published: May 1, 2022

Spinal Cord InjuryPatient ExperienceRehabilitation

Simple Explanation

This study explores the educational needs of people with spinal cord injuries (SCI) in Australia, aiming to identify key areas for developing helpful learning resources. The study used interviews and surveys to gather information from individuals with SCI, their families, and caregivers about what topics are most important for educational materials. The findings highlight a need for personalized educational resources that address specific injury-related concerns and provide practical information about equipment and community support.

Study Duration
Not specified
Participants
116 individuals with SCI, or carers, family & friends
Evidence Level
Mixed-method study

Key Findings

  • 1
    The study found that ‘Your injury’ (personalized, injury-specific information) was ranked as the most important theme for online educational resources.
  • 2
    Within the theme of ‘body physiology’, survey participants ranked ‘bladder/bowel’ as being of the highest importance.
  • 3
    ‘what is covered by the national disability insurance scheme (NDIS)’ and ‘what different types of equipment are available’ were ranked highest in terms of importance within the ‘equipment’ theme.

Research Summary

This study aimed to identify key areas of interest for the production of educational resources for individuals with spinal cord injury (SCI) in Australia. The research involved focus group interviews and an online survey to gather perspectives from individuals with SCI, their families, and caregivers. The study concluded that there is a significant need for personalized and relevant educational resources within the Australian SCI community, particularly focusing on individual injury-specific information, bladder/bowel management, and equipment availability under the NDIS.

Practical Implications

Personalized Education

Educational resources should be tailored to the specific needs and experiences of individuals with different types and severities of SCI.

Focus on Practical Needs

Content should prioritize practical information regarding bladder/bowel management and equipment options, including coverage under the NDIS.

Involve the SCI Community

Individuals with SCI should be actively involved in the design and development of educational resources to ensure relevance and effectiveness.

Study Limitations

  • 1
    The study is limited by the sample size, which may have influenced its power.
  • 2
    The cohort was restricted to individuals already engaging in some way with the SCI community in Australia, via the PCSRF and/or Spinal Life Australia, possibly resulting in an self-selecting selction bias.
  • 3
    Potential cognitive deficits (in particular those caused by co-existing brain injury) may have influenced the outcomes

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