The Journal of Spinal Cord Medicine, 2022 · DOI: 10.1080/10790268.2020.1808772 · Published: May 1, 2022
This study explores the educational needs of people with spinal cord injuries (SCI) in Australia, aiming to identify key areas for developing helpful learning resources. The study used interviews and surveys to gather information from individuals with SCI, their families, and caregivers about what topics are most important for educational materials. The findings highlight a need for personalized educational resources that address specific injury-related concerns and provide practical information about equipment and community support.
Educational resources should be tailored to the specific needs and experiences of individuals with different types and severities of SCI.
Content should prioritize practical information regarding bladder/bowel management and equipment options, including coverage under the NDIS.
Individuals with SCI should be actively involved in the design and development of educational resources to ensure relevance and effectiveness.