Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 1-10 of 130 results
Gesundheitswesen, 2023 • September 9, 2022
The study aimed to develop a research agenda for paraplegia resulting from traumatic spinal cord injury using an adapted James Lind Alliance (JLA) approach. Four consecutive online surveys were conduc...
KEY FINDING: 38 unresolved research questions were identified from the initial survey involving 52 participants.
Contemporary Clinical Trials Communications, 2022 • September 3, 2022
This qualitative study investigated the experiences of patients participating in the PAPAartis clinical trial, which aims to prevent spinal cord injuries during thoracoabdominal aortic aneurysm repair...
KEY FINDING: Patients participate in clinical trials due to trust in doctors, hope for better treatment, and altruistic motives, but often struggle to understand the complex information provided.
J. Pers. Med., 2022 • October 21, 2022
The study evaluated patient satisfaction with surgical procedures and bladder management in chronic SCI patients desiring spontaneous voiding. Initial satisfaction was generally high, especially with ...
KEY FINDING: Most patients were satisfied with their initial bladder outlet operation in facilitating spontaneous voiding, with TUI-BN and external sphincterotomy showing the highest satisfaction rates.
The Journal of Spinal Cord Medicine, 2024 • May 1, 2024
The study evaluated the effectiveness of SCI Thrive, a peer-led online self-management program, for individuals with spinal cord injury (SCI). Results indicated that while there were no significant di...
KEY FINDING: The treatment group had significantly higher scores on CHART occupational subscale (P = .022), but no other differences were found at the end of 6 weeks.
Spinal Cord, 2022 • July 7, 2022
This study evaluated the applicability of the AO Spine PROST for individuals with motor-complete SCI through cognitive interviews. The goal was to identify potential adjustments to enhance the tool's ...
KEY FINDING: Participants generally found the AO Spine PROST to be comprehensive, not offensive, relevant, and largely complete.
Journal of Patient-Reported Outcomes, 2023 • January 4, 2023
This report provides data to support the reliability and validity of scores on several HRQOL measures from the TBI-CareQOL measurement system (which was developed specifically for use in caregivers of...
KEY FINDING: Findings support the internal consistency reliability (all alphas > 0.70 with the vast majority being > 0.80 across the different cohorts) of the TBI-CareQOL measures.
Archives of Rehabilitation Research and Clinical Translation, 2024 • January 1, 2024
This study examined nonresponse bias in inpatient rehabilitation facilities (IRFs) by comparing routine IRF survey data with research survey data from patients with neurologic conditions. The findings...
KEY FINDING: IRF Survey respondents had higher cognitive function than nonrespondents; patients with spinal cord injuries were more likely to complete the IRF Survey than other patients.
The Journal of Spinal Cord Medicine, 2023 • January 1, 2023
This study examined the use of MHV among Veterans with SCI/D, finding limited registration and use of key portal features. Several factors were identified as being associated with both increased and d...
KEY FINDING: Only 14.6% of Veterans with SCI/D in the sample registered for MHV, and among those, 48.7% used the medication refill feature.
PM R, 2023 • September 1, 2023
The study assessed patient favorability toward music therapy (MT) in an inpatient rehabilitation facility (IRF) across three impairment categories, finding that patients generally have a neutral to fa...
KEY FINDING: Most patients (79.8%) scored in either the favorable or neutral ranges regarding music therapy.
Journal of NeuroEngineering and Rehabilitation, 2023 • March 30, 2023
This systematic review assessed user satisfaction with overground gait exoskeletons in individuals with neurological pathologies such as stroke, spinal cord injury (SCI), and multiple sclerosis (MS). ...
KEY FINDING: Users generally reported positive satisfaction with overground exoskeletons in terms of safety, efficacy, and comfort.