Patient Experience Research

KEY FINDING: There is a lack of literature on medication self-management interventions specifically designed for adults with traumatic SCI.

KEY FINDING: PROMIS assessment using CAT is feasible in inpatient rehabilitation with research staff assistance.

KEY FINDING: Health literacy levels varied among SCI patients: some studies reported reasonable or adequate HL, while others found inadequate HL.

KEY FINDING: Participants indicated barriers to SM include transportation/distance, presence of SHCs, and a lack of local resources.

KEY FINDING: Self-efficacy scores significantly increased from baseline to post-intervention with a large effect size (Hedge’s g = 0.89).

KEY FINDING: A positive dose-response relationship was found between the number of JITAI messages and improvements in caregiver strain, anxiety, and depression.

KEY FINDING: The most common theme on Instagram was spreading positivity, while on Twitter, it was the appearance of a wheelchair.

KEY FINDING: Participants had a 20% increase in knowledge after using the PtDA.

KEY FINDING: The study identified five distinct subgroups of tSCI patients based on baseline variables such as age, BMI, injury severity (AIS grade), primary location of injury (PLI), and baseline FIM motor score.

KEY FINDING: The final pain self-management framework consists of 56 interventions, encompassing medical, psychological, therapeutic, and social approaches.