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  4. Identification and Prioritization of Research Questions on Paraplegia Caused by Traumatic Spinal Cord Injury with Those Affected, Their Relatives and Health Care Professionals

Identification and Prioritization of Research Questions on Paraplegia Caused by Traumatic Spinal Cord Injury with Those Affected, Their Relatives and Health Care Professionals

Gesundheitswesen, 2023 · DOI: 10.1055/a-1829-6781 · Published: September 9, 2022

Spinal Cord InjuryPatient ExperienceHealthcare

Simple Explanation

This study aimed to identify and prioritize research questions related to paraplegia resulting from traumatic spinal cord injury, involving affected individuals, their families, and healthcare professionals. The James Lind Alliance (JLA) approach was adapted to develop a research agenda, using online surveys to gather and prioritize unanswered questions from the perspectives of those affected. The study identified key research priorities, including treatment options, healthcare system improvements, and patient-related factors, to guide future research efforts in this area.

Study Duration
Not specified
Participants
People with traumatic paraplegia, their relatives, and health care professionals
Evidence Level
Not specified

Key Findings

  • 1
    38 unresolved research questions were identified from the initial survey involving 52 participants.
  • 2
    26 questions were rated as important by 53 participants in the second survey.
  • 3
    The final top 10 research priorities were determined through a ranking process involving 12 participants.

Research Summary

The study aimed to develop a research agenda for paraplegia resulting from traumatic spinal cord injury using an adapted James Lind Alliance (JLA) approach. Four consecutive online surveys were conducted to identify and prioritize research questions from the perspective of people with paraplegia, their relatives, and caregivers. The study identified and ranked the top 10 research priorities, focusing on treatment, healthcare system improvements, and patient-related factors to guide future research.

Practical Implications

Guide Research Funding

The prioritized research questions can inform funding decisions and research project selection to address relevant issues.

Improve Patient Care

Addressing the identified research gaps can lead to better treatment and support for individuals with paraplegia.

Enhance Healthcare Systems

Focusing on healthcare system-related priorities can improve the overall quality of care and accessibility for affected individuals.

Study Limitations

  • 1
    The online survey format may have excluded certain populations.
  • 2
    Relatively few relatives were recruited, potentially skewing the results.
  • 3
    The study deviated from JLA recommendations by using an online process instead of a personal workshop for the final selection of top 10.

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