Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 21-30 of 130 results
The Journal of Spinal Cord Medicine, 2024 • January 1, 2024
This study explored the knowledge and awareness of bone loss and fracture risk among adults with SCI. It revealed that a significant portion of participants were unfamiliar with BMD and felt their kno...
KEY FINDING: Approximately 20% of participants had never heard of bone mineral density (BMD).
Neurotrauma Reports, 2023 • January 1, 2023
This study investigated the perspectives of persons with spinal cord injury (SCI) on data sharing, including perceived risks and benefits, and willingness to share different types of data. The study f...
KEY FINDING: The majority of participants felt that the benefits of data sharing outweighed the negatives.
Top Spinal Cord Inj Rehabil, 2023 • July 1, 2023
The study aimed to determine if assessment of urinary symptoms in people with neurogenic lower urinary tract dysfunction (NLUTD) should depend on bladder management method (indwelling catheter (IDC), ...
KEY FINDING: Ten urinary symptoms are independent of bladder management, forming a 'core' set of NLUTD urinary symptoms.
Front. Rehabil. Sci., 2023 • December 12, 2023
This study explores the challenges in implementing patient participation in a rehabilitation unit, despite new insights from an action research project. It identifies competing discourses – biomedical...
KEY FINDING: Nurses found it difficult to incorporate patient perspectives due to organizational structures that prioritize task-based routines.
Top Spinal Cord Inj Rehabil, 2023 • January 1, 2023
This qualitative study examined how physical therapists communicate standing and walking ability information to SCI inpatients and explored patient preferences for receiving such feedback. The study r...
KEY FINDING: Participants showed varied preferences for the format, frequency, and type of feedback regarding their standing and walking ability during inpatient rehabilitation.
Top Spinal Cord Inj Rehabil, 2024 • January 1, 2024
The co-design process, including people with SCI and general practitioners, facilitated a shared understanding of problems and identification of needs. The SCI-HMT is a freely accessible resource supp...
KEY FINDING: The SCI-HMT was developed based on participatory research with data synthesis from multiple sources, and five priority health maintenance issues were covered.
Front. Rehabil. Sci., 2024 • February 21, 2024
This paper presents a method for meaningful transdisciplinary stakeholder engagement in rehabilitation technology development that can extended to other projects. Alongside a worked example, we offer ...
KEY FINDING: Eighty percent of issues were rated to be of moderate to high significance, 83% were rated as being feasible to address, and 75% were rated as addressable using existing project resources.
Healthcare, 2024 • February 23, 2024
The study aims to address the complex, fragmented, and multi-faceted evaluation of PwSCI experiences regarding transitions in care, health, function, and quality of life. A staged protocol involving P...
KEY FINDING: Stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers.
Indian Journal of Palliative Care, 2024 • January 16, 2024
The study evaluated the satisfaction of beneficiaries receiving primary palliative care (PC) services in Kerala, India, through a cross-sectional survey of 450 patients. It found that 69.1% of benefic...
KEY FINDING: The overall satisfaction with the Kerala State Primary PC Programme was found to be high at about 69%.
Front. Rehabil. Sci., 2024 • April 10, 2024
Co-production research, emphasizing equality and reciprocity, is becoming more common in health research due to increasing calls for epistemic and health justice. However, it can be challenging in pra...
KEY FINDING: Power imbalances and structural inequities hinder power sharing in co-production research. Addressing this involves researchers being reflective of their status and elevating lived experience perspectives.