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  4. SCI Thrive: Impact of a peer-led online self-management program

SCI Thrive: Impact of a peer-led online self-management program

The Journal of Spinal Cord Medicine, 2024 · DOI: 10.1080/10790268.2023.2192852 · Published: May 1, 2024

Spinal Cord InjuryPatient ExperienceSocial Support

Simple Explanation

This study tested if an online self-management program, SCI Thrive, led by peers, could help people with spinal cord injury (SCI). The program included online content and video discussions. The study found that while there wasn't a significant change in overall quality of life immediately after the program, participants who completed the program showed improvements in their self-efficacy, which is their belief in their ability to manage their health. The researchers suggest that SCI Thrive shows promise for improving self-efficacy in individuals with SCI, and that strategies to increase engagement in the program could maximize its benefits.

Study Duration
Not specified
Participants
184 adults with SCI
Evidence Level
Randomized waitlist control trial

Key Findings

  • 1
    The treatment group had significantly higher scores on CHART occupational subscale (P = .022), but no other differences were found at the end of 6 weeks.
  • 2
    Analysis of all participants who completed SCI Thrive showed significant increase in self-efficacy between baseline (6.32) and 6 weeks (6.81; P < .001) which was maintained at 3 months post treatment (6.83; P = .001).
  • 3
    Those who were more engaged in SCI Thrive reported higher quality of life (P = .001), self-efficacy (P = .007), and increased mobility on the CHART (P = .026).

Research Summary

The study evaluated the effectiveness of SCI Thrive, a peer-led online self-management program, for individuals with spinal cord injury (SCI). Results indicated that while there were no significant differences between the treatment and waitlist groups in overall quality of life, self-efficacy, and life-space assessment immediately after the intervention, participants who completed the program showed improved self-efficacy, maintained at 3-month follow-up. Greater engagement in the program was associated with better quality of life, increased self-efficacy, and greater mobility, suggesting the importance of strategies to enhance participation. The COVID-19 pandemic may have impacted outcome measures.

Practical Implications

Accessible Self-Management

SCI Thrive offers a readily accessible online self-management program for individuals with SCI, addressing barriers to traditional healthcare access.

Improved Self-Efficacy

The program demonstrates potential for enhancing self-efficacy among individuals with SCI, which is crucial for managing health behaviors and achieving personal goals.

Engagement Strategies

Further research should explore strategies to increase participant engagement to maximize the benefits of SCI Thrive, potentially through focused group discussions and additional video conferencing opportunities.

Study Limitations

  • 1
    The results are not generalizable to all individuals with SCI because participants responded to advertisements and invitations.
  • 2
    The study's outcome measures may have been impacted by the COVID-19 pandemic.
  • 3
    Subgroup analyses were limited due to sample size, preventing a deeper understanding of differential benefits from SCI Thrive.

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