Patient Experience Research

KEY FINDING: Adjustment to life with SCI involves a grieving period and the importance of role models in developing perspectives on disability and future aspirations.

KEY FINDING: ArmA-S demonstrated good face and content validity, indicating that it is clear, understandable, and relevant to patients and clinicians.

KEY FINDING: The structure indicator is the proportion of staff with appropriate education and training in self-management principles.

KEY FINDING: The interplay between empowerment and disempowerment emerged as the core theme, permeating participants’ meanings and perceptions, influencing their rehabilitation journey.

KEY FINDING: The study found high completion rates and acceptability of the data collection protocol, with over 98% of care partners completing the study and high compliance rates for daily and monthly surveys.

KEY FINDING: The level of impairment influences patient priorities when considering upper extremity reconstructive surgery.

KEY FINDING: The WeChat applet was found to be helpful and embraced by NGB patients due to its accessibility, flexibility, and intuitive design.

KEY FINDING: A high prevalence of depressive mood was found among people with spinal cord injury, with 84.3% experiencing it.

KEY FINDING: Higher physical and mental health status were independently associated with greater perceptions of holistic care and empathy.

KEY FINDING: Overall satisfaction with upper extremity surgery among individuals with tetraplegia is high, with 76% expressing general satisfaction.