Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 81-90 of 130 results
BMC Neurology, 2014 • October 10, 2014
This study aimed to determine the importance of self-management program components for individuals with traumatic SCI and explore their views on program delivery. The results showed that exercise, nut...
KEY FINDING: Exercise, nutrition, pain management, information/education on aging with a SCI, and confidence were rated as 'very important' by the greatest proportion of participants.
The Journal of Spinal Cord Medicine, 2015 • July 1, 2015
This study investigated the impact of environmental barriers on the subjective health of individuals with chronic spinal cord injury (SCI) over a 5-year period. The research found that physical/struct...
KEY FINDING: Environmental barriers are prevalent among individuals with chronic SCI, with a significant percentage reporting issues with policies, physical structures, attitudes, support, services, and assistance.
Disabil Health J, 2017 • January 1, 2017
This study used photovoice to understand how Veterans with SCI define function, the facilitators and barriers to function, and adaptations to support functioning. The study found that participants def...
KEY FINDING: Participants defined function in terms of 'normalcy,' aspects of daily living, and the ability to be independent.
J Wound Ostomy Continence Nurs, 2016 • September 1, 2016
The purpose of this study was to evaluate the feasibility of a new web-based intermittent catheter self-management intervention. Several catheter practices improved somewhat over three months includin...
KEY FINDING: Catheter practices improved, with more frequent catheterizations every 4–6 hours.
Systematic Reviews, 2016 • August 22, 2016
This systematic review aims to review the literature on self-management interventions to improve skin care in people with a SCI and to address the key elements that are important in advancing self-man...
KEY FINDING: The systematic review aims to identify active ingredients included in self-management interventions targeting skin care in people with a SCI.
Curr Opin Neurol., 2016 • December 1, 2016
Motivation, sense of responsibility and confidence to practice and exercise in the home can be trained to increase adherence to skills practice and exercise both during and after formal rehabilitation...
KEY FINDING: Persons who need inpatient stroke rehabilitation do little walking 6-12 months later.
Top Spinal Cord Inj Rehabil, 2015 • January 1, 2015
To improve SCI education during rehabilitation, programs should maximize the receptiveness of newly injured patients to SCI-related information, optimize the delivery of SCI education, increase the nu...
KEY FINDING: Barriers to SCI education emerged as a particularly strong theme in the literature; 5 specific challenges were consistently identified.
The Journal of Spinal Cord Medicine, 2016 • January 1, 2016
This pilot study investigates patient preferences for receiving prognosis information after traumatic SCI, focusing on the timing, messenger, and setting of the discussion. The results indicate that m...
KEY FINDING: Most patients prefer to receive their prognosis from a physician, specifically a surgeon or physiatrist.
The Journal of Spinal Cord Medicine, 2015 • January 1, 2015
The Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system was developed to address the unmet need for relevant and psychometrically sound patient-reported outcome measures in spinal cord i...
KEY FINDING: The SCI-QOL consists of 19 item banks, including the SCI-Functional Index banks, and 3 fixed-length scales measuring physical, emotional, and social aspects of health-related QOL (HRQOL).
The Journal of Spinal Cord Medicine, 2015 • May 1, 2015
The Spinal Cord Injury-Quality of Life (SCI-QOL) measurement system has been developed over the past 10 years to address the unmet need for comprehensive, conceptually relevant, psychometrically sound...
KEY FINDING: We developed 14 unidimensional calibrated item banks and 3 calibrated scales across physical, emotional, and social health domains.