Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 61-70 of 130 results
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
The study aimed to identify barriers to healthcare access and determinants of satisfaction with healthcare services for people with chronic spinal cord injury (SCI). The results showed that transporta...
KEY FINDING: Elderly individuals rated the availability and quality of healthcare higher than younger individuals.
The Journal of Spinal Cord Medicine, 2020 • May 1, 2020
The study examined long-term compliance with bladder management among SCI patients in Saudi Arabia, finding that many patients initially discharged on CIC discontinued its use within a few months. Lac...
KEY FINDING: A significant number of patients discharged on CIC stopped using it within 3 months due to lack of accessibility and financial support for catheters.
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
This review identified and evaluated patient-reported outcome measures (PROMs) suitable for assessing the impact of spasticity following spinal cord damage (SCD). Condition-specific (PRISM, SCI-SET), ...
KEY FINDING: Two spasticity-specific measures (PRISM and SCI-SET), five generic measures, and four preference-based measures were identified for assessing HRQoL in persons with spasticity following SCD.
The Journal of Spinal Cord Medicine, 2019 • January 1, 2019
The study evaluated patient pain perception and preferences regarding the order of light touch (LT) and pinprick (PP) sensory testing during the ISNCSCI examination. Results indicated that first-time ...
KEY FINDING: All subjects reported that light touch testing was not painful.
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
The study assessed the feasibility of a self-management mobile app for individuals with SCI during inpatient rehabilitation and after community discharge. Feasibility indicators were strong during inp...
KEY FINDING: Recruitment targets were exceeded, and the app was usable for individuals with varying levels of injury during inpatient rehabilitation.
The Journal of Spinal Cord Medicine, 2019 • January 1, 2019
This qualitative study explored healthcare providers’ perceptions of factors influencing medication adherence for individuals with spinal cord injury and dysfunction (SCI/D). Providers identified micr...
KEY FINDING: Micro-level factors, including medication-related factors like side effects and patient-specific factors such as medication knowledge, were most frequently discussed by providers.
Top Spinal Cord Inj Rehabil, 2020 • January 1, 2020
This scoping review identified components of SM within established taxonomies that are embedded in SM interventions for persons with SCI. Most programs delivered general SCI information, with fewer pr...
KEY FINDING: Only a small fraction of programs provided an explicit definition of self-management.
JMIR Rehabil Assist Technol, 2020 • July 31, 2020
This study evaluated the feasibility and potential impact of the SCI & U web-based self-management program for Canadians with SCI using a mixed-methods approach. Results demonstrated that a web-based ...
KEY FINDING: The web-based self-management program is feasible and acceptable for Canadians with SCI.
Journal of Patient-Reported Outcomes, 2020 • August 13, 2020
The study aimed to describe levels and changes in participation, as assessed with the PROMIS-APS and the PROMIS-SPS short forms, of patients in outpatient rehabilitation. Patients undergoing outpatien...
KEY FINDING: Patients undergoing outpatient rehabilitation had lower PROMIS-APS and PROMIS-SPS scores than the general Dutch population at both admission and discharge.
PLoS ONE, 2020 • October 15, 2020
This qualitative study identified key barriers and facilitators affecting the education of individuals with SCI during rehabilitation using focus groups. The study highlights the importance of readine...
KEY FINDING: Participants perceived education to be an ongoing process made up of consecutive phases, each of which had to be overcome before participants felt ready to reappraise their health and well-being.