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  4. Clinical Utility of Patient-Reported Outcome Measures Used for Tendon and Nerve Transfers for Tetraplegia in New Zealand

Clinical Utility of Patient-Reported Outcome Measures Used for Tendon and Nerve Transfers for Tetraplegia in New Zealand

Journal of Hand Surgery Global Online, 2023 · DOI: https://doi.org/10.1016/j.jhsg.2022.10.005 · Published: November 16, 2022

Spinal Cord InjuryPatient ExperienceSurgery

Simple Explanation

This study evaluates how useful certain questionnaires are in measuring the results of upper limb surgeries for people with tetraplegia. The questionnaires include the Canadian Occupational Performance Measure (COPM), the Capabilities of Upper Extremity Questionnaire (CUE-Q), and the Personal Wellbeing Index (PWI). The study looks at data from 43 individuals with tetraplegia who had upper limb surgery, dividing them into groups based on the severity of their spinal cord injury. The study found differences in priorities between the groups and identified redundancy in some questionnaire questions. The researchers suggest that when assessing outcomes, it’s important to consider the level of upper limb impairment and the individual’s sense of personal wellbeing, especially given the demands of surgery.

Study Duration
Not specified
Participants
43 individuals with spinal cord injury (SCI) levels C4-C7 tetraplegia
Evidence Level
Prognostic II

Key Findings

  • 1
    The level of impairment influences patient priorities when considering upper extremity reconstructive surgery.
  • 2
    Question redundancy was evident with the CUE-Q, suggesting that not all questions are relevant for individuals with tetraplegia undergoing upper extremity surgery.
  • 3
    The Personal Wellbeing Index (PWI) captures the possible impacts of improved upper extremity function on an individual’s perceived sense of personal wellbeing.

Research Summary

This study aimed to determine the clinical utility of patient-reported outcome measures (PROMs) used to assess outcomes of upper extremity (UE) reconstructive procedures in individuals with tetraplegia. The findings reinforce the recommendation that the COPM is appropriate for this population, but also raise the possibility that differences in priorities need to be considered in relation to impairment. The analysis of the CUE-Q scores showed significant changes between preoperative and postoperative scores, but there is concern in terms of question redundancy raised for the CUE-Q.

Practical Implications

Tailored Assessments

Assessments should be tailored to the specific level of impairment to accurately reflect patient priorities and functional improvements.

PROM Refinement

The CUE-Q may need refinement or supplementation with other measures to reduce redundancy and improve its ability to detect meaningful changes after surgery.

Wellbeing Focus

Incorporating measures of personal wellbeing, such as the PWI, can provide a more holistic understanding of the impact of upper extremity surgery on individuals with tetraplegia.

Study Limitations

  • 1
    Retrospective data collection
  • 2
    Specific to a New Zealand population
  • 3
    Lack of psychometric testing for the CUE-Q

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