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  4. Shining a light on the road towards conducting principle-based co-production research in rehabilitation

Shining a light on the road towards conducting principle-based co-production research in rehabilitation

Front. Rehabil. Sci., 2024 · DOI: 10.3389/fresc.2024.1386746 · Published: April 10, 2024

Patient ExperienceRehabilitation

Simple Explanation

Co-production in health research means fully involving people with lived experience in all research stages. However, applying co-production is hard because there's no clear definition, practical guidance, or way to overcome academic barriers. To make co-production work better, focus on its core principles: sharing power, building strong relationships, and learning continuously. These principles can lead to fairer, more ethical, and impactful research with those who have relevant lived experience. The article gives practical strategies for rehabilitation researchers to use co-production. It aims to help them work with people with lived experience and their support networks in a way that's more equal and effective.

Study Duration
Not specified
Participants
Not specified
Evidence Level
Perspective

Key Findings

  • 1
    Power imbalances and structural inequities hinder power sharing in co-production research. Addressing this involves researchers being reflective of their status and elevating lived experience perspectives.
  • 2
    Building relational resilience is crucial, requiring sustained investment in building and maintaining meaningful relationships. This involves investing time with community partners and adopting an approach of “generous hospitality”.
  • 3
    Adopting a learning mindset is essential, emphasizing flexibility, adaptability, and humility. Dialogue and iteration are key processes, involving listening, sharing, acknowledging diverse perspectives, and incorporating feedback for ongoing learning.

Research Summary

Co-production research, emphasizing equality and reciprocity, is becoming more common in health research due to increasing calls for epistemic and health justice. However, it can be challenging in practice. Systematic barriers within the research landscape, such as embedded hierarchies in universities and inflexible funding timelines, hinder the egalitarian nature of co-produced research. Addressing these barriers requires transforming the culture and structures of the research ecosystem. Co-produced research is a critical mechanism to improve research translation and benefit clinical practice, especially in rehabilitation settings. Genuine epistemic justice, founded on power sharing, relationship building, and adaptability, is vital for improving the translation of lived experience knowledge to practice.

Practical Implications

Equitable Research Approach

Creating optimal conditions for co-production research necessitates a more equitable approach that challenges current research production systems.

Practical Strategies Implementation

Researchers need access to tangible, practical strategies and processes to properly engage the fundamental principles essential to conducting co-production research.

Improved Collaboration

Adopting strategies to navigate power dynamics, build relational resilience, and embrace a learning mindset fosters a more equitable, ethical, and impactful collaboration with rehabilitation communities.

Study Limitations

  • 1
    Lack of consensus on what constitutes co-production in health research.
  • 2
    Limited guidance on practical steps across diverse research methods.
  • 3
    Structural barriers within academia and funding landscapes.

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