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  4. Beneficiary’s Satisfaction with Primary Palliative Care Services in Kerala – A Cross-Sectional Survey

Beneficiary’s Satisfaction with Primary Palliative Care Services in Kerala – A Cross-Sectional Survey

Indian Journal of Palliative Care, 2024 · DOI: 10.25259/IJPC_223_2023 · Published: January 16, 2024

Patient ExperiencePalliative CareRehabilitation

Simple Explanation

This study assessed how satisfied patients in Kerala, India are with the primary palliative care (PC) services they receive at home. Kerala was the first state in India to implement a community-based PC program. The researchers surveyed 450 patients to understand their satisfaction levels and what factors might influence their satisfaction with the home care services. The study found that most patients were generally satisfied, but also identified areas where the program could be improved, such as including doctor visits and medicine delivery at home.

Study Duration
October 2022 to May 2023
Participants
450 patients registered under the Kerala State Primary PC Programme
Evidence Level
Cross-sectional survey

Key Findings

  • 1
    The overall satisfaction with the Kerala State Primary PC Programme was found to be high at about 69%.
  • 2
    There was a statistically significant association between beneficiary satisfaction and the behavior of PC nurses, particularly their friendliness, communication skills, and the time they spent with patients.
  • 3
    The study identified that patients highly valued the inclusion of doctor visits in home care (71.8%), medicine distribution at home (67.4%), and physical rehabilitation services at home (52.3%).

Research Summary

The study evaluated the satisfaction of beneficiaries receiving primary palliative care (PC) services in Kerala, India, through a cross-sectional survey of 450 patients. It found that 69.1% of beneficiaries were satisfied with home care (HC) services, with satisfaction significantly associated with the behavior of PC nurses and services like physiotherapy and health check-ups. The study concludes that while satisfaction is high, there is a need to expand the scope of the HC program to include doctor visits and medicine delivery to improve patient care.

Practical Implications

Policy Improvement

The findings can inform policy actions to enhance the Kerala State PC Programme, particularly regarding medicine distribution and doctor visits.

Service Expansion

The study suggests expanding the scope of rehabilitation services, especially physical therapy, to better meet patient needs.

Nurse Training

Emphasizing the importance of nurses' communication skills and empathetic approach to improve patient satisfaction.

Study Limitations

  • 1
    Patient's interactions and experiences with the HC team were not explored in depth.
  • 2
    The sense of satisfaction among the patients cannot be tracked over time because this survey is cross-sectional.
  • 3
    Since this is a quantitative study

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