Patient Experience Research

KEY FINDING: The final item banks demonstrated unidimensionality (Bladder Management Difficulties CFI = 0.965; RMSEA = 0.093; Bowel Management Difficulties CFI = 0.955; RMSEA = 0.078) and acceptable fit to a graded response IRT model.

KEY FINDING: Lower self-efficacy and mastery scores were associated with probable depression status in individuals with traumatic SCI.

KEY FINDING: The pre-testing participants provided valuable feedback that led to improvements in the website's content, interactivity, and usability.

KEY FINDING: Language discordance negatively impacts the ability to establish treatment goals and educate patients about occupational therapy, leading to frustration and a lack of understanding of the importance of therapy.

KEY FINDING: The majority of SCI patients felt that small neurological benefits from MPSS were 'very important' to them.

KEY FINDING: Self-management in SCI involves both internal and external responsibilities.

KEY FINDING: The Health Mechanics intervention was perceived as useful and relevant in addressing a diverse range of health issues, but attrition rates and recruitment barriers suggested limitations in the acceptability of the in-person format.

KEY FINDING: Perceived health significantly impacts family roles, autonomy outdoors, social life, and work/education among adults with SCI.

KEY FINDING: Individuals with tetraplegia reported better effectiveness scores compared to those with paraplegia, suggesting they perceive the decision-making process as more aligned with their needs.

KEY FINDING: Patients experienced a reduced ability to participate in decision making during the early phase after SCI due to physical, psychological, and environmental factors.