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  4. Meaning of self-management from the perspective of individuals with traumatic spinal cord injury, their caregivers, and acute care and rehabilitation managers: an opportunity for improved care delivery

Meaning of self-management from the perspective of individuals with traumatic spinal cord injury, their caregivers, and acute care and rehabilitation managers: an opportunity for improved care delivery

BMC Neurology, 2016 · DOI: 10.1186/s12883-016-0534-2 · Published: January 16, 2016

Spinal Cord InjuryPatient ExperienceNeurology

Simple Explanation

Decreasing time in rehabilitation leads to spinal cord injury (SCI) patients needing more self-care skills to prevent complications. This study explores what self-management means to SCI patients, their caregivers, and healthcare managers. Understanding different views can help create better self-management programs for people with SCI.

Study Duration
September 2011 and May 2012
Participants
26 interviews: 7 SCI patients, 7 caregivers, 12 managers
Evidence Level
Not specified

Key Findings

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    Self-management in SCI involves both internal and external responsibilities.
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    SCI patients and caregivers focus on internal responsibilities like wellness and monitoring complications.
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    Managers focus on external responsibilities, like established chronic disease programs.

Research Summary

The study explores self-management in traumatic SCI from the perspectives of individuals with traumatic SCI and their (mainly) spousal caregivers as well as acute care/trauma and rehabilitation health care (or clinical) managers. The meaning of self-management in SCI related to the two overarching themes of internal responsibility attribution and external responsibility attribution. A clear delineation in the meaning of self-management was noted in the traumatic SCI and caregiver participants (i.e., the SCI-caregiver dyad) versus the manager participants.

Practical Implications

Tailored Programs

Develop self-management programs tailored to SCI patients, caregivers, and manager perspectives.

Integrated Approach

Incorporate both wellness/health promotion and chronic disease management elements.

Increased Empowerment

Increase empowerment and overall quality of life for individuals with traumatic SCI and their caregivers.

Study Limitations

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