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  4. Perceptions of Shared Decision Making Among Patients with Spinal Cord Injuries/Disorders

Perceptions of Shared Decision Making Among Patients with Spinal Cord Injuries/Disorders

Top Spinal Cord Inj Rehabil, 2016 · DOI: 10.1310/sci2016-00027 · Published: July 1, 2016

Spinal Cord InjuryPatient Experience

Simple Explanation

This study explores how patients with spinal cord injuries/disorders (SCI/D) perceive shared decision-making (SDM) in their healthcare. SDM is a key part of patient-centered care, where patients actively participate in decisions about their treatment. The study looks at whether factors like demographics, health status, and characteristics of their SCI/D influence how patients feel about SDM. Understanding these factors can help healthcare providers improve how they involve patients in making decisions about their care. The findings suggest that individuals with tetraplegia, better physical health, and better mental health report higher satisfaction with the effectiveness of decision-making. Also, better mental health is linked to better communication about risks and benefits of treatment.

Study Duration
Not specified
Participants
450 individuals with SCI/D
Evidence Level
Not specified

Key Findings

  • 1
    Individuals with tetraplegia reported better effectiveness scores compared to those with paraplegia, suggesting they perceive the decision-making process as more aligned with their needs.
  • 2
    Better physical and mental health were correlated with better effectiveness scores, indicating that overall health status influences perceptions of shared decision-making.
  • 3
    Better mental health was associated with better risk communication scores, suggesting that mental well-being impacts a patient's satisfaction with the information exchange regarding treatment options.

Research Summary

The study examined perceptions of shared decision making (SDM) among individuals with spinal cord injuries/disorders (SCI/D) and the influence of demographics, health, and SCI/D characteristics on these perceptions. The research found that SCI/D characteristics (tetraplegia vs. paraplegia) and health status (physical and mental health) were associated with SDM perceptions, while demographic factors were not significantly related. The conclusion emphasizes the need for interventions to enhance engagement in SDM, especially for individuals with paraplegia or poorer physical and mental health, and highlights the potential for SCI providers to improve SDM incorporation into care.

Practical Implications

Targeted Interventions

Develop interventions specifically tailored to individuals with paraplegia, poorer physical health, and poorer mental health to enhance their engagement in shared decision-making.

Provider Training

Implement training programs for SCI providers focusing on improving their skills in incorporating shared decision-making into patient care.

Enhanced Communication

Improve communication strategies to ensure patients, especially those with mental health issues, are well-informed about the risks and benefits of treatment options.

Study Limitations

  • 1
    Cross-sectional survey design may introduce response and recall biases.
  • 2
    Other unmeasured variables, such as household income, may also influence SDM perceptions.
  • 3
    The COMRADE measure has not been separately validated among individuals with SCI/D.

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