Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 101-110 of 130 results
The Journal of Spinal Cord Medicine, 2018 • May 1, 2018
This qualitative study investigated the experiences and preferences of survivors of SCI about receiving bad news in depth by means of semi-structured interviews. The results revealed that, nearly half...
KEY FINDING: Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians.
African Health Sciences, 2016 • December 1, 2016
The study assessed the satisfaction of users with locally manufactured wheelchairs in Tanzania, focusing on activity and participation needs, as well as the provision, repair, and maintenance services...
KEY FINDING: More than 90% of participants reported that their wheelchairs positively influenced their activity and participation needs.
The Journal of Spinal Cord Medicine, 2012 • January 1, 2012
The study examined the relationship between nursing interventions (education and care management) and patient outcomes following traumatic SCI. Data were collected through systematic recording of nurs...
KEY FINDING: Greater patient participation in nursing activities is associated with better outcomes, suggesting nurses should encourage active involvement.
Spinal Cord, 2011 • January 1, 2011
This study investigated patient preferences for neural prostheses (NPs) to restore bladder function in individuals with spinal cord injury (SCI) using choice-based conjoint (CBC) analysis. The results...
KEY FINDING: Side effects were the most important factor influencing patient choices, followed by the effectiveness of the NP on continence and voiding.
The Journal of Spinal Cord Medicine, 2011 • January 1, 2011
This qualitative study assessed the perception of care by patients with spinal cord injury (SCI) to determine whether an integrated and personalized care pathway could be effective both in hospital an...
KEY FINDING: Patients valued a familiar, less clinical environment for rehabilitation, expecting active involvement in their care rather than passive treatment.
The Journal of Spinal Cord Medicine, 2011 • July 1, 2011
This study investigated the use of on-demand video to provide patient education on spinal cord injury (SCI). The study compared the effectiveness of in-person SCI forums to online streaming videos of ...
KEY FINDING: Online video is an accessible, effective, and well-accepted way to present ongoing SCI education.
Arch Phys Med Rehabil, 2011 • October 1, 2011
This article discusses the involvement of rehabilitation stakeholders in developing PROMIS, a National Institutes of Health-funded initiative for patient-reported outcomes. PROMIS uses various methods...
KEY FINDING: Focus groups revealed that the most relevant aspect of pain, fatigue, and physical limitations was their interference with the ability to function.
The Journal of Spinal Cord Medicine, 2017 • November 2, 2017
This study used the Theoretical Domains Framework (TDF) to determine the implementation considerations for a targeted self-management program for individuals with spinal cord injury (SCI) from the per...
KEY FINDING: All 14 theoretical domains of the TDF were identified as important considerations for a self-management program for individuals with SCI.
The Journal of Spinal Cord Medicine, 2019 • May 1, 2019
This study evaluated the impact of redesigned self-management education classes on patient engagement during inpatient rehabilitation for individuals with spinal cord injury (SCI). Conventional nurse-...
KEY FINDING: Significantly higher average positive engagement responses were observed in the revised peer-led classes compared to conventional nurse-led classes.
BMC Health Services Research, 2018 • March 8, 2018
This qualitative study explored the communication and information needs of 65 major trauma patients over three years post-injury, revealing significant challenges in accessing, using, and understandin...
KEY FINDING: Many patients experienced barriers to communication with health professionals across different care settings, including hospitals, rehabilitation facilities, and the community.