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  4. Starting a new conversation: Engaging Veterans with spinal cord injury in discussions of what function means to them, the barriers/facilitators they encounter, and the adaptations they use to optimize function

Starting a new conversation: Engaging Veterans with spinal cord injury in discussions of what function means to them, the barriers/facilitators they encounter, and the adaptations they use to optimize function

Disabil Health J, 2017 · DOI: 10.1016/j.dhjo.2016.05.012 · Published: January 1, 2017

Spinal Cord InjuryPatient ExperienceRehabilitation

Simple Explanation

This study explores how Veterans with spinal cord injuries (SCI) define 'function,' the obstacles they face, and the strategies they use to improve their function. Veterans took photographs of things that helped or hindered their function, and the adaptations they made. Interviews were then conducted to discuss the photos. The study found that function, for these Veterans, involved normalcy, independence, and the ability to perform daily activities. Facilitators included helpful tools and transportation, while barriers included wheelchair issues and inaccessible environments.

Study Duration
5 months
Participants
9 Veterans with SCI
Evidence Level
Not specified

Key Findings

  • 1
    Participants defined function in terms of 'normalcy,' aspects of daily living, and the ability to be independent.
  • 2
    Facilitators to function included helpful tools, physical therapy/therapists, transportation, and caregivers.
  • 3
    Barriers to function included wheelchair-related issues and interior/exterior barriers both in the community and in the hospital.

Research Summary

This study used photovoice to understand how Veterans with SCI define function, the facilitators and barriers to function, and adaptations to support functioning. The study found that participants defined function in terms of normalcy, independence, and the ability to perform daily activities. The study highlights the importance of patient perspectives in defining function and developing personalized care plans.

Practical Implications

Personalized Care Plans

Insights can be used to develop personalized, patient-driven care plans that address individual needs and goals related to function.

Environmental Modifications

Identifying and addressing environmental barriers can improve accessibility and promote function for individuals with SCI.

Assistive Technology

Understanding the adaptations individuals use can inform the development and provision of assistive technologies.

Study Limitations

  • 1
    Small convenience sample may not represent the larger population of persons with SCI.
  • 2
    Results may not be generalizable or representative of the views of persons with SCI at large.
  • 3
    Sample of Veterans is older and has a longer duration of injury than the population of Veterans with SCI at large.

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