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  4. Breaking the news: A pilot study on patient perspectives of discussing prognosis after traumatic spinal cord injury

Breaking the news: A pilot study on patient perspectives of discussing prognosis after traumatic spinal cord injury

The Journal of Spinal Cord Medicine, 2016 · DOI: 10.1179/2045772315Y.0000000013 · Published: January 1, 2016

Spinal Cord InjuryPatient Experience

Simple Explanation

This study explores how individuals with spinal cord injuries (SCI) want to receive information about their prognosis, particularly regarding the likelihood of neurological recovery. The research focuses on when, by whom, and in what setting patients prefer to learn about their condition and its long-term implications. The findings aim to provide guidance for clinicians on how to effectively communicate prognosis to patients with SCI in a way that is sensitive and informative.

Study Duration
4 Months
Participants
56 individuals with motor complete SCI above T10
Evidence Level
Not specified

Key Findings

  • 1
    Most patients prefer to receive their prognosis from a physician, specifically a surgeon or physiatrist.
  • 2
    The majority of patients want to know their prognosis early after injury, either during acute care or inpatient rehabilitation.
  • 3
    Patients emphasize the importance of clear and sensitive communication when discussing their prognosis.

Research Summary

This pilot study investigates patient preferences for receiving prognosis information after traumatic SCI, focusing on the timing, messenger, and setting of the discussion. The results indicate that most patients want to receive the information from a physician early after injury in a clear and sensitive manner. The study highlights the need for guidelines and training for clinicians on how to effectively communicate prognosis to SCI patients.

Practical Implications

Improved Communication Strategies

Clinicians should prioritize clear, sensitive, and early communication of prognosis to patients with SCI.

Physician-Led Discussions

Physicians, particularly surgeons and physiatrists, should take the lead in discussing prognosis with patients.

Psychological Support

Consider including a psychologist in the discussion to address the emotional aspects of the prognosis.

Study Limitations

  • 1
    Small, convenience sample
  • 2
    Recall bias due to chronically injured individuals
  • 3
    Limited representation of recently injured individuals

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