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  4. Experiences of spinal cord injury patients admitted to the rehabilitation unit at the national referral hospital in Khomas region, Namibia

Experiences of spinal cord injury patients admitted to the rehabilitation unit at the national referral hospital in Khomas region, Namibia

African Journal of Disability, 2022 · DOI: https://doi.org/10.4102/ajod.v11i0.1018 · Published: July 27, 2022

Spinal Cord InjuryPatient ExperienceRehabilitation

Simple Explanation

This study explores the experiences of patients with spinal cord injuries (SCI) admitted to a rehabilitation unit in Namibia. It aims to understand their challenges and how care can be improved. The research identifies negative experiences like limited accessibility, emotional stress leading to depression, and societal discrimination. It also highlights positive experiences such as gaining knowledge in self-care and family support. The study suggests improvements including outreach programs, peer support groups, and decentralizing rehabilitation services to better support individuals with SCI in the community.

Study Duration
August and September 2020
Participants
15 adults (10 males and 5 females) aged between 20 and 59 years with complete SCI
Evidence Level
Qualitative, explorative and descriptive study

Key Findings

  • 1
    Participants experienced negative emotions such as anger, stress, frustration, and sadness, leading to depression after sustaining a spinal cord injury.
  • 2
    Limited accessibility to buildings and transportation was a significant challenge for participants, hindering their independence and reintegration into the community.
  • 3
    Positive experiences included gaining knowledge in self-grooming and self-care activities during rehabilitation, as well as receiving support from family members.

Research Summary

The study explores the experiences of spinal cord injury (SCI) patients at a Namibian rehabilitation unit, revealing both negative and positive aspects of their journey. Negative experiences include emotional distress, societal discrimination, and limited accessibility, while positive experiences involve family support and gaining self-care knowledge. Recommendations emphasize outreach programs, peer support, decentralized rehabilitation services, and promotion of disability rights to improve the lives of people living with SCI.

Practical Implications

Improve Accessibility

Advocate for wheelchair-friendly infrastructure in buildings and transportation to promote independence.

Enhance Mental Health Support

Provide comprehensive psychological support during and after rehabilitation to address emotional stress and prevent depression.

Promote Community Awareness

Implement outreach programs to educate the public about SCI and reduce stigma and discrimination.

Study Limitations

  • 1
    The study focused on patients at a single national referral hospital.
  • 2
    The researcher's familiarity with participants may have influenced responses.
  • 3
    The findings may not be generalizable to all individuals with SCI.

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