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  4. Health literacy of people with spinal cord injury: a systematic review

Health literacy of people with spinal cord injury: a systematic review

Spinal Cord, 2023 · DOI: https://doi.org/10.1038/s41393-023-00903-4 · Published: June 30, 2023

Spinal Cord InjuryPatient ExperienceRehabilitation

Simple Explanation

This study looks at how well people with spinal cord injuries (SCI) understand health information. This is important because SCI can lead to many health issues needing ongoing care. The researchers reviewed existing studies to see the level of health literacy (HL) among individuals with SCI. HL involves understanding and using health information to make informed decisions about their health. The review found that HL levels in people with SCI varied across studies, with some showing reasonable or adequate HL, while others indicated inadequate HL. Factors like race and rehabilitation programs seemed to play a role.

Study Duration
From 1974 to 2021
Participants
Five studies included, ranging from 77 to 290 SCI participants
Evidence Level
Systematic review of cross-sectional studies

Key Findings

  • 1
    Health literacy levels varied among SCI patients: some studies reported reasonable or adequate HL, while others found inadequate HL.
  • 2
    Better health literacy was observed in white individuals with SCI compared to black individuals with SCI, indicating racial disparities in health literacy.
  • 3
    Rehabilitation programs and personalized education may positively influence health literacy levels in the SCI population, highlighting the importance of tailored support.

Research Summary

This systematic review aimed to summarize existing evidence on health literacy (HL) in individuals with spinal cord injury (SCI). The review analyzed five studies meeting inclusion criteria. The review found heterogeneous results regarding HL levels in the SCI population, with studies reporting reasonable, adequate, or inadequate HL. The majority of the studies were from the USA and had a cross-sectional design. The study concludes that HL in the SCI population is limited, and more research is needed. It suggests that guidance and personalized education within rehabilitation programs may influence HL levels.

Practical Implications

Tailored education programs

Develop health education programs tailored to the specific needs and literacy levels of individuals with SCI, considering factors like race/ethnicity, education, and cognitive function.

Healthcare provider training

Train healthcare providers to assess and address health literacy needs of SCI patients, promoting clear communication and shared decision-making.

Address racial disparities

Implement strategies to address racial disparities in health literacy among SCI patients, such as culturally sensitive education materials and interventions.

Study Limitations

  • 1
    Limited number of studies on HL in the SCI population.
  • 2
    Cross-sectional design of included studies limits causal inferences.
  • 3
    Heterogeneity of instruments used in HL assessment.

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