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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 131-140 of 217 results

Spinal Cord InjuryParticipationMental Health

Measuring psychological trauma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Psychological Trauma item bank and short form

The Journal of Spinal Cord Medicine, 2015 • May 1, 2015

This study details the development and validation of the SCI-QOL Psychological Trauma item bank and short form to measure psychological trauma in individuals with spinal cord injuries (SCI). The resea...

KEY FINDING: The 31 items fit a unidimensional model (CFI=0.952; RMSEA=0.061) and demonstrated good precision (theta range between 0.6 and 2.5).

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Spinal Cord InjuryParticipationMental Health

Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form

The Journal of Spinal Cord Medicine, 2015 • May 1, 2015

This study aimed to develop and validate a grief and loss item bank specific to individuals with spinal cord injury (SCI), addressing the limitations of existing measures focused on bereavement. The r...

KEY FINDING: The final calibrated item bank includes 17 items, demonstrating a unidimensional model and good measurement precision, indicating it's a robust tool.

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Spinal Cord InjuryParticipationMental Health

Measuring positive affect and well-being after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Positive Affect and Well-being bank and short form

The Journal of Spinal Cord Medicine, 2015 • May 1, 2015

The study developed and tested the SCI-QOL Positive Affect and Well-being (PAWB) item bank, a new tool for measuring positive emotions in individuals with spinal cord injuries (SCI). The researchers u...

KEY FINDING: The SCI-QOL PAWB bank is a reliable and valid way to measure positive emotions and well-being in people with spinal cord injuries.

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Spinal Cord InjuryParticipationMental Health

Measuring resilience after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Resilience item bank and short form

The Journal of Spinal Cord Medicine, 2015 • May 1, 2015

The study developed and validated the SCI-QOL Resilience item bank and short form to measure resilience in individuals with spinal cord injury (SCI). The item bank was developed using focus groups, co...

KEY FINDING: A unidimensional model was observed (CFI = 0.968; RMSEA = 0.074) indicating that the items measure a single construct of resilience.

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UrologyParticipation

The conceptualization and development of a patient-reported neurogenic bladder symptom score

Research and Reports in Urology, 2013 • October 9, 2013

The study aimed to develop a patient-reported neurogenic bladder symptom score (NBSS) to quantify urinary symptoms and complications in patients with neurogenic bladder dysfunction. The development pr...

KEY FINDING: The study identified eight quality of life measures and 29 symptom-specific instruments related to neurogenic bladder.

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Spinal Cord InjuryParticipationRehabilitation

Predictors of functional outcomes in adults with traumatic spinal cord injury following inpatient rehabilitation: A systematic review

The Journal of Spinal Cord Medicine, 2017 • May 1, 2017

This systematic review aimed to identify, categorize, and rank predictors of functional outcomes for individuals with SCI following rehabilitation, using the ICF model. The review identified 27 predic...

KEY FINDING: Variables in the Body Structure and Function domain were the most consistent predictors of mFIM score at discharge.

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Spinal Cord InjuryParticipationOrthopedics

The impact of trunk impairment on performance of wheelchair activities with a focus on wheelchair court sports: a systematic review

Sports Medicine - Open, 2015 • February 16, 2015

This systematic review synthesizes evidence on the impact of trunk impairment on wheelchair activities in court sports. Identified studies were observational, defining trunk impairment based on SCI le...

KEY FINDING: Able-bodied individuals can reach further than those with spinal cord injuries (SCI).

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Spinal Cord InjuryUrologyParticipation

Factors Affecting Quality of Life Among Spinal Cord Injury Patients in Korea

Int Neurourol J, 2016 • December 31, 2016

This study surveyed SCI patients in South Korea to identify factors affecting their quality of life, revealing that urinary and bowel problems, along with sexual dysfunction, are significant concerns ...

KEY FINDING: Urinary problems, particularly incontinence and urinary tract infections, were the most commonly reported issues among SCI patients.

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Spinal Cord InjuryParticipationEndocrinology

Body mass index changes over 3 years and effect of obesity on community mobility for persons with chronic spinal cord injury

The Journal of Spinal Cord Medicine, 2016 • July 1, 2016

This study aimed to identify the prevalence of obesity in individuals with chronic spinal cord injury (SCI), track changes in body mass index (BMI) over a three-year period, and determine the impact o...

KEY FINDING: The majority of participants with chronic SCI were overweight (23%) or obese (44%) according to the SCI adjusted BMI classification.

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Spinal Cord InjuryParticipationRehabilitation

Comparison of disability and quality of life between patients with pediatric and adult onset paraplegia

The Journal of Spinal Cord Medicine, 2018 • November 1, 2018

This study compared disability and quality of life between patients with pediatric-onset and adult-onset spinal cord injuries (SCIs). The study found no significant difference in overall disability le...

KEY FINDING: There was no significant difference in disability levels (CHART scores) or depression (BDI scores) between the two groups.

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