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  4. Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form

Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form

The Journal of Spinal Cord Medicine, 2015 · DOI: 10.1179/2045772315Y.0000000015 · Published: May 1, 2015

Spinal Cord InjuryParticipationMental Health

Simple Explanation

This study addresses the need for a specific tool to measure grief and loss in individuals with spinal cord injury (SCI), as existing measures primarily focus on bereavement related to the death of a loved one. The researchers developed the SCI-QOL Grief and Loss item bank, a new measurement system that captures grief and loss aspects highly relevant to the losses experienced by people with SCI. The item bank was created using input from SCI patients and clinicians, ensuring the tool's relevance and validity for this specific population.

Study Duration
Not specified
Participants
717 individuals with SCI
Evidence Level
Not specified

Key Findings

  • 1
    The final calibrated item bank includes 17 items, demonstrating a unidimensional model and good measurement precision, indicating it's a robust tool.
  • 2
    While some items showed differential item functioning (DIF), the effect sizes were negligible, suggesting little practical impact on score estimates.
  • 3
    The SCI-QOL Grief and Loss item bank is available as a Computer Adaptive Test (CAT) and a short form, providing flexibility in administration based on user needs.

Research Summary

This study aimed to develop and validate a grief and loss item bank specific to individuals with spinal cord injury (SCI), addressing the limitations of existing measures focused on bereavement. The researchers created the SCI-QOL Grief and Loss item bank, comprising 17 items, through literature review, focus groups, expert review, and patient feedback. Psychometric analyses confirmed its unidimensionality and measurement precision. The developed item bank offers various administration options, including a Computer Adaptive Test (CAT) and a short form, providing flexibility for researchers and clinicians to assess grief and loss in people with SCI effectively.

Practical Implications

Clinical Assessment

The SCI-QOL Grief and Loss item bank provides clinicians with a tool to assess the specific grief experiences of individuals with SCI, aiding in tailored therapy approaches.

Research

The validated item bank facilitates research on grief and loss in the context of SCI, enabling studies on how grief symptoms change over time and their impact on outcomes like quality of life.

Treatment Development

Identifying individuals with prolonged, disabling grief symptoms through this measure can lead to the development and study of tailored grief treatment approaches.

Study Limitations

  • 1
    Further research is needed to examine the validity of this Grief and Loss measure.
  • 2
    Studies are needed to determine how grief symptoms change over time and whether grief and loss can be discriminated from depression and anxiety in people with SCI.
  • 3
    Future work will also include establishing discriminant validity from depression and other grief measures to further ensure that the SCI-QOL Grief and Loss item bank captures the unique losses experienced after injury.

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