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  4. Comparison of disability and quality of life between patients with pediatric and adult onset paraplegia

Comparison of disability and quality of life between patients with pediatric and adult onset paraplegia

The Journal of Spinal Cord Medicine, 2018 · DOI: 10.1080/10790268.2016.1275447 · Published: November 1, 2018

Spinal Cord InjuryParticipationRehabilitation

Simple Explanation

This study compares the disability and quality of life between individuals who experienced spinal cord injuries (SCIs) in childhood and those who experienced them as adults. The research examines factors affecting disability and quality of life, and how these differ based on the age of injury onset. The study found that while overall disability levels were similar, adults who experienced SCIs showed better adaptation to their environment compared to those who experienced them in childhood.

Study Duration
Not specified
Participants
40 patients with SCI (20 with pediatric-onset, 20 with adult-onset)
Evidence Level
Cohort study

Key Findings

  • 1
    There was no significant difference in disability levels (CHART scores) or depression (BDI scores) between the two groups.
  • 2
    Adult-onset SCI patients reported significantly higher scores in the environmental domain of the WHOQOL-Bref compared to pediatric-onset SCI patients.
  • 3
    Living arrangements differed significantly, with pediatric-onset patients more likely to live with parents and siblings, while adult-onset patients were more likely to live with spouses and children.

Research Summary

This study compared disability and quality of life between patients with pediatric-onset and adult-onset spinal cord injuries (SCIs). The study found no significant difference in overall disability levels or depression between the two groups. However, adult-onset SCI patients showed better environmental adaptation. The research suggests that while the age of SCI onset does not impact overall disability, it may influence environmental adaptation and living arrangements.

Practical Implications

Environmental Adaptation Strategies

Healthcare providers should focus on providing resources and support to improve environmental adaptation, particularly for pediatric-onset SCI patients.

Family and Social Support

Recognizing the different living situations, interventions should be tailored to address the specific needs of each group, considering family dynamics and support systems.

Long-term Rehabilitation Goals

Rehabilitation programs should consider that while overall disability may be similar, long-term goals may differ based on the age of injury onset.

Study Limitations

  • 1
    Small sample size
  • 2
    Lack of longitudinal follow-up
  • 3
    Focus on paraplegia, limiting generalizability to all SCI patients

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