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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Social Support Research

Browse the latest research summaries in the field of social support for spinal cord injury patients and caregivers.

Showing 61-70 of 76 results

NeurologyRehabilitationSocial Support

Family caregiving of persons following neurotrauma: Issues in research, service and policy

NeuroRehabilitation, 2010 • January 1, 2010

Family caregivers are vital to the healthcare system, yet they often lack adequate training and support, leading to potential negative impacts on their well-being and that of the care recipient. Curre...

KEY FINDING: Psychological interventions for family caregivers of persons who have incurred neurotrauma can effectively lower caregiver distress and improve their ability to solve problems related to coping with everyday issues.

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Spinal Cord InjuryHealthcareSocial Support

The SCIRehab project: social work and case management

The Journal of Spinal Cord Medicine, 2011 • January 1, 2011

The SCIRehab Project is a multi-center, 5-year investi- gation recording and analyzing the details of the SCI inpatient rehabilitation process for approximately 1400 patients; only patients enrolled i...

KEY FINDING: Patients received a mean total of 10 hours of SW/CM services, with a mean of 72.8 total minutes per week.

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Spinal Cord InjurySocial SupportResearch Methodology & Design

The experience of being a partner to a spinal cord injured person: A phenomenological-hermeneutic study

Int J Qualitative Stud Health Well-being, 2011 • October 14, 2011

This qualitative interview study focuses on the personal experiences of partners to a spinal cord injured person. In the acute phase after the injury, partners also felt harmed, and support was needed...

KEY FINDING: In the acute phase after the injury, partners also felt harmed, and support was needed in relation to their own daily activities, eating, resting, and managing distress.

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Patient ExperienceNeurorehabilitationSocial Support

Peer-led, transformative learning approaches increase classroom engagement in care self-management classes during inpatient rehabilitation of individuals with spinal cord injury

The Journal of Spinal Cord Medicine, 2019 • May 1, 2019

This study evaluated the impact of redesigned self-management education classes on patient engagement during inpatient rehabilitation for individuals with spinal cord injury (SCI). Conventional nurse-...

KEY FINDING: Significantly higher average positive engagement responses were observed in the revised peer-led classes compared to conventional nurse-led classes.

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Patient ExperienceRehabilitationSocial Support

Effects of family group conferences among high-risk patients of chronic disability and their significant others: study protocol for a multicentre controlled trial

BMJ Open, 2018 • January 15, 2018

This multicentre controlled trial evaluates the effectiveness and implementation of Family Group Conferences (FGC) in rehabilitation medicine to improve future treatment. The study focuses on patient,...

KEY FINDING: The study aims to examine if optimizing decision-making during Family Group Conferences (FGCs) increases empowerment in both the patient and their significant other.

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Spinal Cord InjuryMental HealthSocial Support

Effect of Family Caregiving on Depression in the First 3 Months After Spinal Cord Injury

Ann Rehabil Med, 2018 • January 1, 2018

This retrospective study examined the impact of family caregiving on depression in patients with spinal cord injury (SCI) within the first three months of injury. The results indicated a significantly...

KEY FINDING: The prevalence of depression in SCI patients during the first three months was 43%.

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Spinal Cord InjuryRehabilitationSocial Support

Experiences of peer counselling during inpatient rehabilitation of patients with spinal cord injuries

Spinal Cord Series and Cases, 2019 • January 1, 2019

This qualitative study evaluated peer counseling during inpatient rehabilitation of patients with spinal cord injuries (SCI) from the perspective of both patients and peer counselors. Patients experie...

KEY FINDING: Patients valued the solution-oriented, practical, and motivating nature of peer counseling, particularly appreciating the authentic and open demeanor of the peer counselors.

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RehabilitationDisabilitySocial Support

Secondary Health Conditions and Social Role Satisfaction in Adults with Long-term Physical Disability

Health Psychol, 2019 • May 1, 2019

The study examined the relationship between secondary health conditions (SHCs), functional limitations, chronic medical comorbidities (CMCs), and satisfaction with social roles in adults with chronic ...

KEY FINDING: Secondary health conditions, functional impairments, and chronic medical comorbidities collectively accounted for 52% of the variance in satisfaction with social roles at the beginning of the study.

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Spinal Cord InjuryMental HealthSocial Support

Development of the Parent Forum: An in-person approach to supporting caregivers of youth with spinal cord injury

The Journal of Spinal Cord Medicine, 2019 • May 1, 2019

The study details the development of a hospital-based Parent Forum, an in-person intervention for caregivers of youth with spinal cord injury (SCI). The intervention was refined over two cycles based ...

KEY FINDING: Caregivers initially reported increased positive problem-solving orientation after the first Parent Forum but also felt an increase in impulsivity, possibly due to information overload.

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Spinal Cord InjurySocial Support

Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients

BMC Neurology, 2019 • June 13, 2019

This study examines the challenges and coping strategies within caregiving relationships after a spinal cord injury (SCI). It explores the experiences of both individuals with SCI and their family car...

KEY FINDING: Factors contributing to relationship deterioration include protective behaviors, asymmetrical dependency, loss of sex and intimacy, and difficulty adapting to the injury.

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