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  4. Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients

Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients

BMC Neurology, 2019 · DOI: https://doi.org/10.1186/s12883-019-1347-x · Published: June 13, 2019

Spinal Cord InjurySocial Support

Simple Explanation

This study explores the challenges faced by individuals with spinal cord injuries (SCI) and their family caregivers in maintaining their relationships after the injury. It identifies factors that contribute to relationship deterioration and strategies used to rebuild and maintain these relationships. The research focuses on understanding the experiences of both the individuals with SCI and their caregivers, including spouses and parents, and the coping mechanisms they employ to adjust to their new lives post-injury. The findings highlight the need for healthcare professionals and support groups to provide education, training, and counseling to assist individuals with SCI and their families in adapting to their new lives and strengthening their relationships.

Study Duration
Not specified
Participants
19 individuals with SCI and 15 family caregivers
Evidence Level
Qualitative descriptive study

Key Findings

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    Factors contributing to relationship deterioration include protective behaviors, asymmetrical dependency, loss of sex and intimacy, and difficulty adapting to the injury.
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    Strategies for rebuilding and maintaining relationships involve interdependence, shifting commonalities, adding creativity into routine, and creating a new normal.
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    The study emphasizes the importance of open communication, mutual support, and addressing individual needs to foster healthy caregiving relationships after a spinal cord injury.

Research Summary

This study examines the challenges and coping strategies within caregiving relationships after a spinal cord injury (SCI). It explores the experiences of both individuals with SCI and their family caregivers, focusing on factors that lead to relationship deterioration and strategies for rebuilding and maintaining these relationships. The research identifies key themes such as the deterioration of relationships due to protective behaviors, asymmetrical dependency, loss of intimacy, and difficulty adapting. Conversely, it highlights strategies like interdependence, shifting common interests, adding creativity, and establishing a new normal as ways to improve relationships. The study concludes by emphasizing the need for healthcare professionals and peer support groups to offer education, training, and counseling to help individuals with SCI and their families adapt to their new lives and sustain healthy relationships post-injury.

Practical Implications

Healthcare Training

Healthcare professionals should be trained to provide relationship-based education and communication skills training to dyads living with SCI.

Counseling Services

Counseling services during rehabilitation can better prepare individuals with SCI and their family caregivers for the challenges they may face post-discharge.

Peer Support Groups

Connecting family caregivers with peer support groups can reduce feelings of loneliness, social isolation, and psychological distress, fostering a more supportive environment.

Study Limitations

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