Browse the latest research summaries in the field of social support for spinal cord injury patients and caregivers.
Showing 41-50 of 76 results
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
This study explored the expectations of caregivers of persons with traumatic SCI in the acute phase of injury and recovery. Results indicate that caregivers tended to overestimate the extent to which ...
KEY FINDING: A significant percentage of caregivers had unmet expectations regarding the patient's recovery in social engagement, pain decrease, and sleep improvement at both three and six months post-injury.
Spinal Cord, 2019 • May 23, 2019
The study investigated the feasibility and acceptability of a nationwide volunteer peer mentoring system for in-patients with spinal cord injury (SCI) during primary rehabilitation. The results showed...
KEY FINDING: A nationwide mentor corps was successfully established.
The Journal of Spinal Cord Medicine, 2021 • May 1, 2021
The study evaluated the effectiveness of peer interventions on self-efficacy, unplanned hospital readmissions, and quality of life for patients with spinal cord injury (SCI) undergoing inpatient rehab...
KEY FINDING: Implementation of peer interventions led to a significant decrease in the number of patients readmitted and unplanned hospital days 30 days post-discharge.
Topics in Spinal Cord Injury Rehabilitation, 2019 • October 1, 2019
This study indicates that the burden experienced by family caregivers of people with SCI is directly related to the extent of physical secondary complications of care recipients. The evaluation and re...
KEY FINDING: Caregivers with lower education showed statistically significant higher levels of burden. This was also true for those providing care for more than 3 years and those providing more than 8 hours of caregiving daily.
Top Spinal Cord Inj Rehabil, 2019 • October 1, 2019
This qualitative study examined the characteristics of caregiving from the perspectives of adolescents and young adults (AYAs) with spinal cord injuries (SCIs) and their informal caregivers. The study...
KEY FINDING: The meaning of “caregiving” is highly individualized for AYAs with SCIs, varying among dyads.
Topics in Spinal Cord Injury Rehabilitation, 2019 • October 1, 2019
This study aimed to identify the skills needed by family caregivers to enhance their competency in caring for individuals with SCI living in the community. The study identified 29 SCI family caregivin...
KEY FINDING: The study identified 29 distinct caregiving skills crucial for family members supporting individuals with SCI, categorized into six key caregiving processes.
Top Spinal Cord Inj Rehabil, 2019 • December 1, 2019
The study explored the implementation of a peer-mentor training program within SCI Canada, finding a positive context for implementing evidence-based practices, although resource constraints pose chal...
KEY FINDING: Participants displayed a generally positive attitude toward evidence-based practices and organizational readiness for change, with peer support being central to SCI Canada's mission.
BMC Neurology, 2020 • January 1, 2020
The inter-PEER project protocol presents a comprehensive scientific evaluation of AR training programs for participants with SCI. The primary objective is to measure the effects of AR training program...
KEY FINDING: The inter-PEER project is the first systematic evaluation of AR training programs' effects on individuals with SCI.
Archives of Rehabilitation Research and Clinical Translation, 2019 • January 1, 2019
The study assessed the feasibility of delivering problem-solving training (PST) to care partners of adults with traumatic injuries or stroke during the inpatient stay. Recruitment was challenging, wit...
KEY FINDING: Delivering a self-management intervention to care partners during the care recipient’s acute hospital stay is feasible for a subset of potential participants.
The Journal of Spinal Cord Medicine, 2021 • September 1, 2021
Family caregivers play a vital role in supporting individuals with neurological injuries, but they experience both positive and negative consequences as a result of caregiving. Intervention research h...
KEY FINDING: Early research highlighted the negative impact of caregiving on caregiver wellbeing, including depression and anxiety, while more recent studies also identified positive outcomes such as happiness and resiliency.