Browse the latest research summaries in the field of social support for spinal cord injury patients and caregivers.
Showing 31-40 of 76 results
Health Soc Care Community, 2022 • January 1, 2022
This study estimates the economic value of long-term family caregivers for individuals with spinal cord injury (SCI) in Switzerland, using data from 717 family caregivers. The study found that family ...
KEY FINDING: Family caregivers in the sample spent an average of 27 hr per week caring for a relative for almost 12 years.
International Journal for Equity in Health, 2021 • December 1, 2021
This study aimed to understand the pathways through which SES influences loneliness in a large sample of persons with physical disabilities, namely SCI. This study highlighted the importance of second...
KEY FINDING: The study demonstrated robust associations between socioeconomic status and all potential mediators, whereby higher socioeconomic status was associated with better health, participation and psychosocial resources.
Top Spinal Cord Inj Rehabil, 2022 • January 1, 2022
This mixed methods study examined coping, social support, and well-being among family caregivers of adults with SCI, revealing the importance of individual and extra-individual resources. Cluster anal...
KEY FINDING: The study identified three caregiver profiles: effective problem solvers, mixed problem solvers with negative orientations, and low endorsers overall, each with distinct levels of social support, coping mechanisms, and well-being.
Int. J. Environ. Res. Public Health, 2022 • April 11, 2022
This study aimed to identify the challenges and benefits for people with SCI who engage in peer support via VC. An anonymous online survey was used to gather data. Positive benefits of engaging in pee...
KEY FINDING: Videoconferencing offers convenience and facilitates social connectedness for individuals with SCI.
Spinal Cord, 2022 • May 17, 2022
This study describes the development of an International Spinal Cord Injury Basic Data Set for caregivers of individuals with SCI/D, intended for research and clinical settings. The data set was devel...
KEY FINDING: The beta test form included 27 items, covering 3 domains: (1) demographic information for persons providing care; (2) caregiver’s allocation of time and satisfaction; and (3) perceived burden of caregiving.
Advances in Orthopedics, 2022 • June 13, 2022
This study investigated the knowledge, attitude, and practice (KAP) of caregivers regarding pressure injury (PI) prevention and care in individuals with spinal cord injury (SCI) at a rehabilitation ce...
KEY FINDING: Caregivers demonstrated a moderate level of knowledge regarding PI prevention and care (M = 73.68%).
Health Soc Care Community, 2022 • July 4, 2022
This study investigated the timeframes associated with the NDIS pathway and discharge delays for individuals with disabilities requiring funded supports to leave the hospital. The research found that ...
KEY FINDING: Most participants (72%) experienced a delayed discharge from the hospital.
Arch Phys Med Rehabil, 2023 • March 1, 2023
This report establishes the clinical utility of scores on the Econ-QOL Short Form in caregivers of persons with TBI and provides evidence that it is valid and appropriate to use such scores not only i...
KEY FINDING: Internal consistency reliability of the Econ-QOL short form scores were excellent (all Cronbach’s alphas ≥0.92).
Top Spinal Cord Inj Rehabil, 2022 • July 1, 2022
This study investigated child, parent, and family adjustment in a multidisciplinary spina bifida (SB) clinic, utilizing standardized measures to capture a wider age range of participants and additiona...
KEY FINDING: Almost half of the children and adolescents with spina bifida reported being at risk for poor psychosocial functioning based on their health-related quality of life.
Int. J. Environ. Res. Public Health, 2022 • August 31, 2022
This study investigated the factors affecting depression in family caregivers of spinal-cord-injury patients. Data were collected on caregiver depression, patient and caregiver characteristics, physic...
KEY FINDING: Caregivers of patients who were not economically active reported higher levels of depression.