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  4. INTERnational Project for the Evaluation of “activE Rehabilitation” (inter-PEER) – a protocol for a prospective cohort study of community peer-based training programmes for people with spinal cord injury

INTERnational Project for the Evaluation of “activE Rehabilitation” (inter-PEER) – a protocol for a prospective cohort study of community peer-based training programmes for people with spinal cord injury

BMC Neurology, 2020 · DOI: https://doi.org/10.1186/s12883-019-1546-5 · Published: January 1, 2020

Spinal Cord InjuryRehabilitationSocial Support

Simple Explanation

Active Rehabilitation (AR) is a community peer-based concept designed for individuals with spinal cord injury (SCI). It primarily involves brief residential training programs. The inter-PEER project aims to scientifically evaluate the effects of AR training programs on community-dwelling individuals with SCI, addressing the current lack of robust scientific evidence. The study uses a prospective cohort design, assessing participants at the start and end of the training program, and again three months later, using web-based surveys and practical wheelchair skills tests.

Study Duration
3 months
Participants
7 participants (pilot phase) with diverse SCI and sociodemographic characteristics
Evidence Level
Prospective cohort study

Key Findings

  • 1
    The inter-PEER project is the first systematic evaluation of AR training programs' effects on individuals with SCI.
  • 2
    The study uses standardized outcome measures relevant to the AR context to facilitate quality evaluations of community peer-based programs.
  • 3
    The project aims to stimulate international collaborations and inform the design of randomized controlled trials on AR training programs' effects.

Research Summary

The inter-PEER project protocol presents a comprehensive scientific evaluation of AR training programs for participants with SCI. The primary objective is to measure the effects of AR training programs on physical independence, self-efficacy, and wheelchair skills. The secondary objective is to measure the effects on community participation, life satisfaction, level of physical activity, and resilience.

Practical Implications

Modify existing AR programs

Findings will be used to modify the design of existing AR programmes to better serve future participants' needs.

Strengthen the case for developing programs

Findings may strengthen the case for developing such programmes in countries with limited availability of community rehabilitation.

Provide evidence for the role of AR programs

inter-PEER will provide evidence for the role of AR programmes in the continuum of SCI care, i.e. acute care and in-patient rehabilitation, which may have further implications for policy and organisation of health care systems.

Study Limitations

  • 1
    The study does not have a control group.
  • 2
    Potential for confounding factors given the absence of a control group.
  • 3
    Brief duration of the intervention and short follow-up period.

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