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  4. Coping, Social Support, and Caregiver Well-Being With Families Living With SCI: A Mixed Methods Study

Coping, Social Support, and Caregiver Well-Being With Families Living With SCI: A Mixed Methods Study

Top Spinal Cord Inj Rehabil, 2022 · DOI: 10.46292/sci21-00013 · Published: January 1, 2022

Spinal Cord InjurySocial SupportResearch Methodology & Design

Simple Explanation

This research explores the challenges and support systems for family caregivers of adults with spinal cord injury (SCI) using a combination of interviews and surveys. The study identified three different profiles of caregivers based on their problem-solving skills and satisfaction with social support, revealing how these factors influence their well-being. The findings highlight the need for comprehensive support programs that focus on developing coping skills, providing respite care, and offering mental health resources to improve the well-being of caregivers and their families.

Study Duration
2014 and 2018
Participants
39 adults with SCI and their caregivers
Evidence Level
Not specified

Key Findings

  • 1
    The study identified three caregiver profiles: effective problem solvers, mixed problem solvers with negative orientations, and low endorsers overall, each with distinct levels of social support, coping mechanisms, and well-being.
  • 2
    Effective problem-solving skills and strong social support networks are associated with greater caregiver well-being and fewer unmet needs.
  • 3
    Caregivers with negative problem-solving orientations and those who under endorsed social support reported higher levels of burden, isolation, and unmet needs.

Research Summary

This mixed methods study examined coping, social support, and well-being among family caregivers of adults with SCI, revealing the importance of individual and extra-individual resources. Cluster analysis identified three caregiver profiles based on problem-solving skills and satisfaction with social support, which were linked to differences in well-being and unmet needs. The study underscores the need for multimodal interventions targeting skill development, respite options, and mental health support to improve caregiver well-being and reduce burden.

Practical Implications

Clinical Practice

SCI care programs should incorporate caregiver interventions, including education on resources and support systems.

Psychosocial Support

Interventions should focus on enhancing problem-solving skills, coping mechanisms, and social support to improve caregiver well-being.

Systemic Change

Streamlining and reorganizing service providers is needed to address unmet needs and improve accessibility of support systems for families.

Study Limitations

  • 1
    Limited quantitative detection of patterns due to small group sizes across profiles.
  • 2
    Challenges in recruitment across multiple sites.
  • 3
    Under exploration of certain topics, such as family economics, due to participant unease.

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