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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 11-20 of 217 results

Spinal Cord InjuryParticipationGastroenterology

Effect of neurogenic bowel dysfunction symptoms on quality of life after a spinal cord injury

Journal of Orthopaedic Surgery and Research, 2023 • June 22, 2023

This study investigated the impact of neurogenic bowel dysfunction (NBD) on the quality of life (QoL) in Chinese individuals with spinal cord injury (SCI). It highlights the management strategies used...

KEY FINDING: Prolonged defecation time (>60 minutes) significantly deteriorates the quality of life in SCI patients.

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ParticipationRheumatologyMental Health

Psychometric Properties of the Persian Version of the Evaluation of Ankylosing Spondylitis Quality of Life (EASi‐QoL) and Ankylosing Spondylitis Disease Activity Score (ASDAS) Questionnaires: A Cross‐Sectional Study

Health Science Reports, 2025 • January 10, 2025

The Persian versions of both the ASDAS and the EASi‐QoL questionnaires were found to be valid and reliable for use in patients with ankylosing spondylitis. The EASi-QoL questionnaire was validated for...

KEY FINDING: The Persian version of the EASi‐QoL questionnaire demonstrated adequate reliability and validity for assessing quality of life in Iranian AS patients.

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Spinal Cord InjuryParticipationGastroenterology

Relationship between neurogenic bowel dysfunction severity and functional status, depression, and quality of life in individuals with spinal cord injury

The Journal of Spinal Cord Medicine, 2023 • May 1, 2023

The study aimed to evaluate the relationship between the severity of neurogenic bowel dysfunction (NBD) and functional status, depression, and quality of life (QoL) in individuals with spinal cord inj...

KEY FINDING: Half of the individuals with SCI in the study had moderate-to-severe NBD.

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Spinal Cord InjuryParticipationAssistive Technology

The associations of functional independence and quality of life with sitting balance and wheelchair skills among wheelchair users with spinal cord injury

The Journal of Spinal Cord Medicine, 2024 • January 1, 2024

The study investigated the associations between functional independence, quality of life, sitting balance, and wheelchair skills in individuals with SCI who use wheelchairs full-time. Lower functional...

KEY FINDING: Functional independence, as measured by the SCIM III, significantly correlated with sitting balance, as measured by the FIST.

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Spinal Cord InjuryParticipationRehabilitation

Changes in functional independence after inpatient rehabilitation in patients with spinal cord injury: A simultaneous evaluation of prognostic factors

The Journal of Spinal Cord Medicine, 2024 • May 1, 2024

This retrospective cohort study investigated functional independence changes in 180 SCI patients after inpatient rehabilitation using SCIM III and FIM. Significant independence improvements were noted...

KEY FINDING: Independence significantly improved for all severities and levels of injury, except for AIS A and B patients at upper cervical levels.

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Spinal Cord InjuryParticipationPain Management

Pain, pain interference, social and school/ work functioning in youth with spinal cord injury: A mediation analysis

The Journal of Spinal Cord Medicine, 2024 • September 8, 2022

The mechanisms of the predictive effects of pain severity on school/work functioning in youth with SCI are explained in part by the serial multiple mediator effects of pain interference and social fun...

KEY FINDING: Pain predictive effects on school/work functioning were serially mediated by pain interference and social functioning.

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Spinal Cord InjuryParticipationNeurology

Cognitive and physical impairment in spinal cord injury: A scoping review and call for new understanding

The Journal of Spinal Cord Medicine, 2023 • January 1, 2023

This scoping review examines current research on physical and cognitive impairment in SCI patients to identify research gaps and encourage new studies on cognitive frailty in this population. The revi...

KEY FINDING: Neuroinflammation is a potential mechanism for cognitive impairment among patients with SCI. The review indicates that pro-inflammatory mediators and markers of glial activation are major factors contributing to further cognitive decline and dementia.

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Spinal Cord InjuryParticipation

Relationship between secondary health conditions and life satisfaction in persons with spinal cord injury: study across twenty‑one countries

Quality of Life Research, 2023 • March 2, 2023

This study examined the relationship between secondary health conditions (SHCs) and life satisfaction (LS) in persons with spinal cord injury (SCI) across 21 countries. The results indicated that indi...

KEY FINDING: A greater burden of SHCs is associated with decreased life satisfaction in persons with SCI.

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Spinal Cord InjuryParticipationRehabilitation

Long-term prediction of functional independence using adjusted and unadjusted single items of the functional independence measure (FIM) at discharge from rehabilitation

The Journal of Spinal Cord Medicine, 2024 • July 1, 2024

This study investigated the ability of individual FIM items assessed at rehabilitation discharge to predict long-term functional independence in individuals with SCI. The results showed that discharge...

KEY FINDING: The top three predictors of total FIM score at chronic phase were Toilet (Transfers domain), Toileting (Self-care domain), and Bowel (Sphincter control domain).

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Spinal Cord InjuryParticipationOrthopedics

Long-term assessment of the functional independence measure in sports-related spinal cord injury

The Journal of Spinal Cord Medicine, 2024 • January 17, 2023

This study examined the predictors of functional independence amongst SRSCI patients. This study provides a granular analysis of factors important to consider when predicting these patients’ functiona...

KEY FINDING: Factors associated with functional independence outcomes at one-year follow-up were dissimilar from those at five-year follow-up.

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