Social Support Research

KEY FINDING: The decision to pursue nerve or tendon transfer surgery was associated with a sense of hope and anticipation among caregivers, who looked forward to potential gains in the independence and movement of the person with SCI.

KEY FINDING: Travel participation is negatively associated with social isolation among people with SCI.

KEY FINDING: Successful program delivery requires strong inter-professional relationships between healthcare professionals and community organizational staff.

KEY FINDING: Caregivers of patients with lower ADL scores (≤ 24) reported significantly higher caregiver burden compared to those with higher ADL scores.

KEY FINDING: Items were generally rated favorably for importance, clarity, and appropriateness.

KEY FINDING: The total burden score exhibited good internal consistency (α = 0.93), with no floor or ceiling effects.

KEY FINDING: Participants engaged in skill-building, resource sharing, and problem-solving within the online forum.

KEY FINDING: The study identified three main themes: Awareness needs, Resource needs, and Personal care needs, reflecting the key challenges faced by FCGs.

KEY FINDING: Under similar circumstances, male and female caregivers invest similar time in overall caregiving.

KEY FINDING: Interactions with peers and peer mentors helped children and caregivers gain valuable insights into managing fatigue and other consequences of ABI, leading to improved coping strategies.