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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 61-70 of 217 results

Spinal Cord InjuryParticipationRehabilitation

Quality of Life and Activities of Daily Living among Patients with Complete Cervical Spinal Cord Injury and Surgical Treatment in Vietnam

International Journal of Environmental Research and Public Health, 2021 • September 15, 2021

This study investigated the quality of life (HRQoL) and activities of daily living (ADL) among patients with complete cervical spinal cord injury who had undergone surgical treatment in Vietnam. The s...

KEY FINDING: Participants with the most severe spinal cord injuries (ASIA-A) had the lowest scores for activities of daily living (ADL), instrumental activities of daily living (IADL), and health-related quality of life (HRQoL).

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Spinal Cord InjuryParticipationRehabilitation

Functional outcome following inpatient rehabilitation among individuals with complete spinal cord injury in Nepal

Spinal Cord Series and Cases, 2021 • January 28, 2021

This study describes functional outcomes among individuals with complete SCI in the low-income setting of Nepal. All SCI groups showed a positive trend in SCIM III from admission to discharge, with im...

KEY FINDING: Individuals with cervical and thoracic NLIs demonstrated statistically significant improvement in SCIM III scores from admission to discharge.

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Spinal Cord InjuryUrologyParticipation

Nocturnal bladder emptying and Quality of life in patients with spinal cord injury

European Journal of Physical and Rehabilitation Medicine, 2022 • June 1, 2022

The study evaluated the influence of nocturnal bladder emptying, bladder emptying method, and nocturnal incontinence on the Quality of Life (QoL) of patients with spinal cord injury (SCI). The results...

KEY FINDING: General Quality of Life was better for paraplegic patients compared to tetraplegic patients.

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Spinal Cord InjuryParticipationPatient Experience

Investigation of health literacy level and its effect on quality of life in patients with spinal cord injury

The Journal of Spinal Cord Medicine, 2023 • January 1, 2023

This cross-sectional study investigated the health literacy (HL) level in 77 patients with traumatic spinal cord injury (SCI) and evaluated its relationship with their quality of life (QoL). The study...

KEY FINDING: The HL level was inadequate in 32.5%, problematic-limited in 40.3%, sufficient in 19.5%, and excellent in 7.8% of the patients.

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Spinal Cord InjuryParticipationMental Health

Longitudinal measurement invariance of the international spinal cord injury quality of life basic data set (SCI‑QoL‑BDS) during spinal cord injury/disorder inpatient rehabilitation

Quality of Life Research, 2022 • November 3, 2021

This study examined the internal consistency and longitudinal measurement invariance of the SCI-QoL-BDS, a brief quality of life questionnaire, among individuals with SCI/D undergoing first inpatient ...

KEY FINDING: The SCI-QoL-BDS demonstrated good internal consistency across all measurement time points during inpatient rehabilitation.

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Spinal Cord InjuryParticipationRehabilitation

Identification and relationship of quality of life and self- care ability among Chinese patients with traumatic spinal cord injuries: a cross-sectional analysis

Brazilian Journal of Medical and Biological Research, 2021 • December 1, 2021

The study evaluated the self-care ability and quality of life among Chinese patients with traumatic spinal cord injuries, also exploring the relationship between these factors and demographic, clinica...

KEY FINDING: More than half of the patients were dependent on caregivers for daily activities after a spinal cord injury.

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Spinal Cord InjuryParticipationPediatrics

PedsQL™ Spinal Cord Injury Module: Reliability and Validity

Top Spinal Cord Inj Rehabil, 2022 • January 1, 2022

The study examined the measurement properties of the PedsQL™ SCI Module, a new tool designed to assess health-related quality of life (HRQOL) in youth with spinal cord injury (SCI). Results indicated ...

KEY FINDING: The PedsQL™ SCI Module includes nine scales measuring different aspects of life with SCI, such as daily activities, mobility, and worries related to bladder and bowel function.

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Spinal Cord InjuryParticipationCOVID-19

The COVID-19 pandemic impacts all domains of quality of life in Egyptians with spinal cord injury: a retrospective longitudinal study

Spinal Cord, 2022 • February 26, 2022

The study aimed to assess the effect of the COVID-19 pandemic on the quality of life (QOL) of individuals with spinal cord injury (SCI) in Egypt. The results clearly indicated decreased QOL across all...

KEY FINDING: All four QOL domains (Physical Health, Psychological, Social Relationships, and Environment) showed a statistically significant decrease in individuals with SCI during the COVID-19 pandemic.

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Spinal Cord InjuryParticipationRehabilitation

Spinal Cord Injury in Middle-aged and Older Adults Who Had Undergone Active Rehabilitation Treatment at a Remote Hospital: A Case Series

Progress in Rehabilitation Medicine, 2022 • March 1, 2022

This case series reports on the active rehabilitation treatment and management of ten middle-aged and older patients with spinal cord injury (SCI) at a remote general hospital. The study found signifi...

KEY FINDING: The Barthel Index (BI) scores significantly improved from 39.0 ± 30.9 at admission to 65.0 ± 28.2 at discharge (P<0.05).

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Spinal Cord InjuryParticipationNeurology

Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration

Children, 2022 • February 27, 2022

This study aimed to understand the needs and research priorities of young people with spinal cord injuries/disorders (SCI/D) or spina bifida (SB) and their parents in Switzerland, as part of the inter...

KEY FINDING: Young people with SCI/D reported a QoL sum score of 77%, while those with SB reported 73%. Parent-proxy reports were lower, at 70% for SCI/D and 64% for SB.

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