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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 31-40 of 217 results

Spinal Cord InjuryParticipationRehabilitation

Quality of life from the patient perspective at the end of the first rehabilitation after the onset of spinal cord injury/disorder – A qualitative interview-based study

The Journal of Spinal Cord Medicine, 2025 • September 27, 2023

This study explored patients’ perspectives on their QoL during their first inpatient rehabilitation after the onset of SCI/D. The interviewees judged their satisfaction with life as a whole, their phy...

KEY FINDING: Social life, health, and autonomy are the most important aspects for the interviewees in forming their general concept of a good QoL.

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Spinal Cord InjuryParticipationRehabilitation

Is Spending Nights Away From Home Associated With Participation and Life Satisfaction After Spinal Cord Injury? A Longitudinal Perspective

Top Spinal Cord Inj Rehabil, 2023 • December 1, 2023

This longitudinal study investigated the relationship between travel participation (measured by nights spent away from home) and social, occupational participation, and life satisfaction among individ...

KEY FINDING: Travel and social participation declined as people lived longer with SCI.

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ParticipationPediatricsRehabilitation

Outcomes following intensive day rehabilitation for young people in Western Australia

Journal of Pediatric Rehabilitation Medicine, 2024 • January 1, 2024

This study evaluated the goals and outcomes of young people in Western Australia who attended a specialist intensive day rehabilitation programme (“iRehab”) at Perth Children’s Hospital. A diverse pop...

KEY FINDING: Young people in the iRehab program achieved significant improvements in occupational performance, independence, and goal attainment.

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Spinal Cord InjuryUrologyParticipation

Arabic version of the SF‐Qualiveen: cross‑cultural adaptation, translation, and validation of urinary disorder‐specific instruments in patients with spinal cord injury

Journal of Orthopaedic Surgery and Research, 2024 • January 1, 2024

This study successfully translated and validated the SF-Qualiveen questionnaire into Arabic for use with spinal cord injury (SCI) patients. The translated version maintains the original questionnaire'...

KEY FINDING: The Arabic SF-Qualiveen demonstrated good internal consistency, with a Cronbach's alpha of > 0.8 for the overall score.

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ParticipationNeurologyRehabilitation

CHARACTERIZATION OF AN ITALIAN POPULATION WITH NEUROLOGICAL DISORDERS IN A REHABILITATION SETTING USING CLINFIT

Journal of Rehabilitation Medicine, 2024 • January 18, 2024

This study aims to describe the functioning profile of people affected by neurological health conditions, using the ClinFIT Generic-30. The current study data suggests that the ClinFIT Generic-30 migh...

KEY FINDING: The 10 most commonly impaired ICF categories included 3 for Body Functions (exercise tolerance functions (b455), mobility of joint functions (b710), and muscle power functions (b730)) and 7 for Activities and Participation (carrying out daily routine (d230), handling stress and other psychological demands (d240), changing basic body position (d410), maintaining a body position (d415), transferring oneself (d420), walking (d450), and moving around (d455)).

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Spinal Cord InjuryParticipationSocial Support

Correlations between ADL in patients with SCI and caregiver burden, quality of life, and presenteeism in South Korea

Scientific Reports, 2024 • January 25, 2024

This study examined the correlation between ADL performance in patients with SCI and their caregivers’ caregiver burden, QoL, and presenteeism in rehabilitation centers and the community. The findings...

KEY FINDING: Caregivers of patients with lower ADL scores (≤ 24) reported significantly higher caregiver burden compared to those with higher ADL scores.

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Spinal Cord InjuryParticipationRehabilitation

Revisiting functioning recovery in persons with spinal cord injury undergoing first rehabilitation: Trajectory and network analysis of a Swiss cohort study

PLoS ONE, 2024 • February 9, 2024

This study re-estimated previously published functioning trajectory models based on an updated dataset, and confirmed the corresponding four trajectory classes of stable high functioning, early, moder...

KEY FINDING: The study confirmed four previously identified functioning trajectory classes: stable high functioning, early, moderate, and slow functioning improvement.

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Spinal Cord InjuryParticipationMental Health

The interrelationship between pain, life satisfaction and mental health in adults with traumatic spinal cord injury, in the context of a developing country

Spinal Cord Series and Cases, 2024 • February 26, 2024

The study examined the relationship between pain, life satisfaction, and mental health in adults with traumatic spinal cord injuries (TSCI) in South Africa. Findings indicated that pain was associated...

KEY FINDING: Pain (both intensity and how much it interferes with life) is significantly associated with higher levels of depression and anxiety, and lower life satisfaction.

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Spinal Cord InjuryParticipationRehabilitation

The Quality of Life in Patients with Spinal Cord Injury: Assessment and Rehabilitation

J. Clin. Med., 2024 • March 21, 2024

This review examines the assessment of QoL in SCI patients and its influence on rehabilitation, finding various psychological and physical elements impact QoL. The review highlights that spirituality,...

KEY FINDING: QoL in SCI patients is influenced by factors such as spirituality and depression, with spirituality being a significant determinant of QoL.

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Spinal Cord InjuryParticipationRehabilitation

Participation and autonomy, independence in activities of daily living and upper extremity functioning in individuals with spinal cord injury

Scientific Reports, 2024 • April 16, 2024

This study investigated the impact of spinal cord injury (SCI) on autonomy and its correlation with activity performance and upper extremity functioning in 25 adults with chronic cervical or thoracic ...

KEY FINDING: Participants with SCI reported feeling restricted in their autonomy, particularly in outdoor activities, family roles, and indoor activities.

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