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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 181-190 of 217 results

Spinal Cord InjuryParticipationGastroenterology

Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury

Top Spinal Cord Inj Rehabil, 2019 • August 7, 2018

This systematic review aimed to identify and classify outcome measures assessing the influence of neurogenic bowel dysfunction (NBD) on quality of life (QoL) and related constructs after spinal cord i...

KEY FINDING: Thirteen QoL outcome tools were identified, five objective and eight subjective, used in studies assessing the influence of NBD on QoL in SCI.

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Spinal Cord InjuryParticipationRehabilitation

Fatigability during volitional walking in incomplete spinal cord injury: cardiorespiratory and motor performance considerations

Neural Regeneration Research, 2018 • May 1, 2018

Fatigability, encompassing both performance decline and altered sensations, significantly challenges individuals with spinal cord injuries (SCI) by disrupting metabolic homeostasis due to cardiorespir...

KEY FINDING: Individuals with incomplete SCI experience elevated feelings of tiredness following prolonged self-selected volitional treadmill walking, unlike able-bodied individuals.

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Spinal Cord InjuryParticipationTrauma

Quality of life among individuals with rugby-related spinal cord injuries in South Africa: a descriptive cross-sectional study

BMJ Open, 2018 • January 1, 2018

This study investigates the quality of life (QoL) among individuals with rugby-related spinal cord injuries (SCIs) in South Africa, using the International Classification of Functioning, Disability an...

KEY FINDING: Participation in activities and income were significantly associated with overall QoL among rugby players with spinal cord injuries.

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Spinal Cord InjuryParticipationAccessibility

Contextualizing Disability: A Cross-sectional Analysis of the Association between the Built Environment and Functioning among People Living with Spinal Cord Injury in the United States

Spinal Cord, 2019 • February 1, 2019

This study examined the association between the built environment and physical functioning in adults with spinal cord injury (SCI). It used a cross-sectional design and data from four SCI Model System...

KEY FINDING: People with paraplegia living in neighborhoods with more destinations and a nearby park reported higher levels of self-care functioning.

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ParticipationNeurologyRehabilitation

Interview Functional Independence Measure score: self-reporting as a simpler alternative to multidisciplinary functional assessment

Singapore Med J, 2019 • April 1, 2019

This study evaluated the validity of self-reported FIM motor scores in stroke patients as an easier alternative to FIM scoring by a multidisciplinary team. Our study demonstrated modest agreement betw...

KEY FINDING: There was substantial agreement on overall FIM motor score between patient self-reporting and multidisciplinary assessment (intraclass correlation coefficient [ICC] 0.651).

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Spinal Cord InjuryParticipationResearch Methodology & Design

Contextualizing the lived experience of quality of life for persons with spinal cord injury: A mixed-methods application of the response shift model

The Journal of Spinal Cord Medicine, 2019 • July 1, 2019

This study examined how individuals with spinal cord injury (SCI) experience, define, and maintain quality of life (QOL) by using the response shift (RS) model. The RS model helps contextualize the QO...

KEY FINDING: Four response shift themes were identified: behavior-driven, awareness-driven, social comparison, and resignation and despair.

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ParticipationRehabilitationResearch Methodology & Design

Movement perceived as chores or a source of joy: a phenomenological-hermeneutic study of physical activity and health

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING, 2018 • August 14, 2018

This study explores the diverse meanings people ascribe to physical activity, revealing it can range from an unpleasant chore to a source of joy. These meanings impact how individuals engage with phys...

KEY FINDING: Physical activity can be perceived as a source of joy, a means to overcome bodily struggles in daily chores, or simply a way to minimize bodily functions for basic daily life.

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Spinal Cord InjuryParticipationRehabilitation

Quality of Life Outcomes for Veterans With Spinal Cord Injury Receiving Individual Placement and Support (IPS)

Topics in Spinal Cord Injury Rehabilitation, 2018 • May 3, 2018

This mixed methods study examined QOL among veterans with SCI participating in IPS for 24 months. The study showed that IPS participants who become employed report consistent improvement in handicap, ...

KEY FINDING: IPS participants who were competitively employed reported consistent improvements in handicap, health-related quality of life (QOL), and life satisfaction measures over time.

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ParticipationMental HealthRehabilitation

Productive activities, mental health and quality of life in disability: exploring the role enhancement and the role strain hypotheses

BMC Psychology, 2019 • January 1, 2019

This study explores how engagement in productive activities relates to mental health and quality of life (QoL) for individuals with physical disabilities, testing role enhancement versus role strain h...

KEY FINDING: Total productivity load and paid work load were positively related to mental health and QoL in men.

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Spinal Cord InjuryParticipationResearch Methodology & Design

Quality of life after spinal cord injury in Thai individuals: A mixed-methods study

Hong Kong Physiotherapy Journal, 2019 • October 12, 2018

This study assessed health-related quality of life (HRQoL) in Thai individuals with spinal cord injury (SCI) using a mixed-methods sequential explanatory design. The study found that QoL themes of Tha...

KEY FINDING: The qualitative data revealed that the most salient themes of HRQoL in individuals with SCI were "supporting factors toward QoL" and "driving force post injury".

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