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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 161-170 of 217 results

Spinal Cord InjuryParticipationPublic Health

Health-related quality of life among individuals with long-standing spinal cord injury: a comparative study of veterans and non-veterans

BMC Public Health, 2010 • January 5, 2010

The study aimed to compare HRQOL between veterans and non-veterans with SCI in Iran, using the SF-36 questionnaire in a cross-sectional study design. Results indicated that veterans experienced lower ...

KEY FINDING: Male veterans had a significantly lower HRQOL than non-veterans with SCI, except in physical and social functioning.

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Spinal Cord InjuryParticipationRehabilitation

Satisfaction with participation using the wheelchair among individuals with spinal cord injury

Spinal Cord, 2010 • September 1, 2010

This study described self-identified indoor and outdoor participation outcomes in conjunction with satisfaction ratings with performance of the outcomes among community dwelling people with SCI. Parti...

KEY FINDING: Community dwelling people with SCI commonly engage in wheelchair oriented participation outcomes related to “community, social, and civil life”, “domestic life”, and “mobility”.

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Spinal Cord InjuryParticipationRehabilitation

Marital Status, Marital Transitions, Well-Being and Spinal Cord Injury: An Examination of the Effects of Sex and Time

Arch Phys Med Rehabil, 2011 • March 1, 2011

The study examined the applicability of the marital resource or marital crisis models to the SCI population by studying the effects of gender, marital status and marital transitions on well-being. Res...

KEY FINDING: Marital loss through separation/divorce or widowhood had the most consistent negative impact on well-being outcomes.

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Spinal Cord InjuryParticipationNeurology

Association of Spasticity and Life Satisfaction after Spinal Cord Injury

Spinal Cord, 2011 • September 1, 2011

This study examined the relationship between spasticity and life satisfaction in individuals with SCI, finding that spasticity indicators were consistently negatively correlated with life satisfaction...

KEY FINDING: Three aspects of spasticity (Daily Activities, Positive Impact, and spasticity at its worst) all were negatively correlated with Home Life Satisfaction, Global Satisfaction, and Overall Quality of Life.

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Spinal Cord InjuryParticipationOrthopedics

Effects of reduction in shoulder pain on quality of life and community activities among people living long-term with SCI paraplegia: a randomized control trial

The Journal of Spinal Cord Medicine, 2011 • January 1, 2011

The study investigated the effects of reducing shoulder pain on the quality of life (QOL) and social activities of individuals with SCI paraplegia. Participants were assigned to either an exercise tre...

KEY FINDING: Reductions in shoulder pain were significantly associated with increases in social interaction among participants in the exercise group.

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Spinal Cord InjuryParticipationResearch Methodology & Design

Developing a Contemporary Patient Reported Outcomes Measure for Spinal Cord Injury

Arch Phys Med Rehabil, 2011 • October 1, 2011

The study aimed to develop a comprehensive and specific PRO measure for SCI, addressing the limitations of existing generic or narrowly focused tools. Focus groups with SCI patients and clinicians rev...

KEY FINDING: Qualitative analysis highlighted three key domains: physical-medical health, emotional health, and social participation, informing the development of the SCI-QOL.

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Spinal Cord InjuryParticipationRehabilitation

Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: adaptation or measurement bias?

Qual Life Res, 2012 • November 30, 2011

The study analyzed longitudinal life satisfaction data from a prospective cohort study to understand changes in life satisfaction during and after inpatient rehabilitation for persons with SCI. The st...

KEY FINDING: Persons in the low LS trajectory showed increase in the LS ‘now’ score, but not in the LS ‘comparison’ score and retrospective score, suggesting scale recalibration.

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UrologyParticipationNursing

Quality of life of patients using intermittent urinary catheterization

Rev. Latino-Am. Enfermagem, 2017 • January 1, 2017

This multicenter study compared the QoL of neurogenic bladder patients using intermittent urinary catheterization in Brazil and Portugal. Data were collected using questionnaires to assess sociodemogr...

KEY FINDING: Brazilian patients showed higher QoL scores in the psychological domain, while Portuguese patients scored lower in the environmental domain.

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Spinal Cord InjuryParticipationHealthcare

A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom

Qual Life Res, 2017 • November 1, 2017

This study explored the quality of life (QOL) perspectives of adults with spinal cord injury (SCI) in the United States (US) and the United Kingdom (UK), focusing on factors such as medical care, func...

KEY FINDING: Medical care significantly impacts QOL for individuals with SCI, with US participants reporting negative experiences due to fragmented care and insurance-related barriers.

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Spinal Cord InjuryParticipationResearch Methodology & Design

Generating Rasch-based activity of daily living measures from the Spinal Cord Injury Longitudinal Aging Study

Spinal Cord, 2018 • January 1, 2018

This study generated the SCI_ADL measure using existing data from the SCI Longitudinal Aging Study to assess self-care abilities of individuals with SCI over a 20-year period. The SCI_ADL measure demo...

KEY FINDING: The SCI_ADL measure showed good reliability and could detect changes in self-care function over a 20-year period.

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