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Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

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Participation Research

Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.

Showing 111-120 of 217 results

Spinal Cord InjuryParticipationRehabilitation

Objective and Self-Reported Physical Activity Measures and Their Association With Depression and Satisfaction With Life in Persons With Spinal Cord Injury

Arch Phys Med Rehabil, 2016 • October 1, 2016

This study investigated the relationship between objective and self-reported physical activity (PA) measures, depression, and satisfaction with life (SWL) in individuals with spinal cord injury (SCI)....

KEY FINDING: Objective wheelchair propulsion (WCP) distance and speed were predicted by self-reported time away from home/yard and lower frequency of car transfers.

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ParticipationSocial SupportBrain Injury

Health-Related Quality of Life in Caregivers of Individuals with Traumatic Brain Injury: Development of a Conceptual Model

Arch Phys Med Rehabil, 2015 • January 1, 2015

This study aimed to identify aspects of HRQOL relevant to caregivers of individuals with TBI and propose an integrated conceptual framework. Nine focus groups with caregivers of individuals with moder...

KEY FINDING: Caregivers' social health was the most frequently identified area of concern, encompassing community life, role changes, and finances.

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Spinal Cord InjuryParticipationPublic Health

Spinal Cord Injury Community Survey: A National, Comprehensive Study to Portray the Lives of Canadians with Spinal Cord Injury

Top Spinal Cord Inj Rehabil, 2014 • January 1, 2014

The Spinal Cord Injury Community Survey (SCICS) in Canada comprehensively assessed needs, community participation, and quality of life among individuals with SCI. The survey identified significant dif...

KEY FINDING: Major expressed needs for services to support community living are met to a great extent for a substantial proportion of people with SCI.

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Spinal Cord InjuryParticipationRehabilitation

An Exploratory Analysis of the Potential Association Between SCI Secondary Health Conditions and Daily Activities

Top Spinal Cord Inj Rehabil, 2014 • January 1, 2014

This study explores the association between secondary health conditions (SHCs) and daily activities (DAs) among individuals with traumatic spinal cord injury (tSCI). The findings indicate that the pre...

KEY FINDING: The presence of an SHC increased the probability of not participating in daily activities. Certain SHCs were associated with many DAs, including light-headedness/dizziness, fatigue, neurologic deterioration, and respiratory infections.

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Spinal Cord InjuryParticipationRehabilitation

Understanding Quality of Life in Adults with Spinal Cord Injury Via SCI-Related Needs and Secondary Complications

Top Spinal Cord Inj Rehabil, 2014 • December 1, 2014

This study examined the relationship between SCI-related needs, secondary complications, and quality of life (QoL) in adults with spinal cord injury (SCI). The results indicated that unmet vital and p...

KEY FINDING: Unmet vital and personal development SCI-related needs are negatively related to QoL in adults with SCI.

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Spinal Cord InjuryParticipationRehabilitation

Definitions of Quality of Life: What Has Happened and How to Move On

Top Spinal Cord Inj Rehabil, 2014 • September 1, 2014

This article reviews the evolution, definitions, and measurement of quality of life (QOL) and health-related quality of life (HRQOL), particularly in the context of spinal cord injury (SCI) rehabilita...

KEY FINDING: The use of the term “well-being” in the WHO definition of health contributes to the conceptual confusion about what constitutes health versus QOL.

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Spinal Cord InjuryParticipationResearch Methodology & Design

Review of Cross-Cultural Issues Related to Quality of Life After Spinal Cord Injury

Top Spinal Cord Inj Rehabil, 2014 • July 1, 2014

This article describes how QOL is defined and conceptualized. Cross-culturally, the concept has been assessed in many ways, evolving from an economic indicator to what is currently primarily understoo...

KEY FINDING: There were no significant differences in how the US and Brazilian samples rated their QOL, suggesting good preliminary concurrent validity for the translated version of the QOL Data Set.

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Spinal Cord InjuryParticipationRehabilitation

Predicting Psychosocial Outcomes Using a Brief Measure of Quality of Life in a Sample of People with Spinal Cord Injury

Top Spinal Cord Inj Rehabil, 2014 • July 1, 2014

This study investigated the use of a brief QOL measure in people with SCI. It aimed to determine associations with clinical outcomes and compare scores with nondisabled individuals. The results showed...

KEY FINDING: Participants with SCI reported more low QOL scores and fewer high QOL scores than the nondisabled group, indicating a generally lower perception of QOL among individuals with SCI.

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Spinal Cord InjuryParticipationRehabilitation

Psychological Quality of Life in and After Spinal Cord Injury Rehabilitation: A Longitudinal Multicenter Study

Top Spinal Cord Inj Rehabil, 2014 • July 1, 2014

This study examined the changes in QOL in individuals with SCI and their close persons during the first 2 years post injury across multiple European countries. The study found improvements in physical...

KEY FINDING: Individuals with SCI experienced improvements in their physical QOL over the two-year study period, suggesting adaptation and recovery after discharge from rehabilitation.

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Spinal Cord InjuryUrologyParticipation

Impact of bladder, bowel and sexual dysfunction on health status of people with thoracolumbar spinal cord injuries living in the community

The Journal of Spinal Cord Medicine, 2017 • September 1, 2017

This study investigates the prevalence of bladder/bowel incontinence and sexual dysfunction in individuals with traumatic thoracolumbar spinal cord injuries (TLSCI) living in the community. The study ...

KEY FINDING: 58.8% of participants reported bladder incontinence, 54.0% bowel incontinence, 60.8% sexual dysfunction, and 29.4% had all three.

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