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  4. International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

Spinal Cord Series and Cases, 2017 · DOI: 10.1038/scsandc.2017.50 · Published: August 10, 2017

Spinal Cord InjuryUrologyResearch Methodology & Design

Simple Explanation

The International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function were developed in 2011 as part of the overall International Data Sets project to help provide a standardized platform that clinicians could use in the medical record to follow patient’s sexual concerns. Updates to the International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function are necessary because a validation study identified the need for a self-report format. The variable ‘sexual orientation’ has been added to the data sets along with appropriate values including ‘heterosexual’, ‘bisexual’, ‘homosexual (gay or lesbian)’, ‘asexual’, ‘prefer not to say’, and ‘do not know’.

Study Duration
Not specified
Participants
International expert work group
Evidence Level
Data set review and modification

Key Findings

  • 1
    The data sets were modified to a self-report format to avoid confusion in interpretation and data collection.
  • 2
    The data sets were adapted to include a new variable to address the issue of sexual orientation, providing a more comprehensive assessment.
  • 3
    The difference between the data sets and the autonomic standards was clarified to avoid potential confusion in their application.

Research Summary

The International SCI Male Sexual Function Basic Data Set Version 2.0 and the International SCI Female Sexual and Reproductive Function Basic Data Set Version 2.0 were developed and their differences from Version 1.0 are detailed. The data sets were changed to a self-report format, and the issues of sexual orientation and pediatric concerns were deemed important components. Clinicians are encouraged to address the sexual health needs of persons with SCIs as a routine part of clinical care and to use Version 2.0 of the data sets for clinical treatment and research.

Practical Implications

Standardized Data Collection

Provides a standardized method for clinicians to document and follow patient's sexual concerns in the medical record.

Improved Research Comparison

Enables researchers to use a basic data set to describe sexual concerns, promoting comparison of study results.

Comprehensive Assessment

Incorporates sexual orientation and pediatric concerns, leading to a more comprehensive evaluation of sexual health.

Study Limitations

  • 1
    The team only found one article specifically assessing use of these data sets.
  • 2
    Clinicians may not consistently evaluate patients’ interest in sexual activity and their concerns.
  • 3
    Detailed listing of other possible concerns are not addressed in the basic data sets

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