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  4. Exploration of the Experiences of Persons in the Traumatic Spinal Cord Injury Population in Relation to Chronic Pain Management

Exploration of the Experiences of Persons in the Traumatic Spinal Cord Injury Population in Relation to Chronic Pain Management

Int. J. Environ. Res. Public Health, 2023 · DOI: 10.3390/ijerph20010077 · Published: December 21, 2022

Spinal Cord InjuryPain ManagementResearch Methodology & Design

Simple Explanation

This study explores the experiences of people with traumatic spinal cord injuries (TSCI) in South Africa regarding their chronic pain management. The research highlights the ineffectiveness of standard pain treatments and the need for better education and shared decision-making between patients and clinicians. Many patients develop their own coping strategies to deal with persistent pain, which suggests current pain management approaches are not meeting their needs. There's a call for a more holistic approach that includes alternative therapies and stronger collaboration between healthcare providers and patients. The study emphasizes the importance of understanding pain beyond just prescribing medication. It suggests incorporating psychological and social factors into treatment plans, creating a therapeutic alliance between clinicians and patients, and exploring alternative pain management options.

Study Duration
Not specified
Participants
13 individuals living with TSCI
Evidence Level
Level 4, Qualitative descriptive study

Key Findings

  • 1
    Standard pain management, largely pharmacological, is often ineffective in providing significant or lasting relief for chronic pain in TSCI patients.
  • 2
    There is a lack of adequate education for patients regarding pain physiology and available pain management strategies, leaving them feeling uninformed and unsupported.
  • 3
    Patients feel unheard and experience an unbalanced decision-making process with clinicians, highlighting the need for improved therapeutic alliance and shared decision-making in treatment plans.

Research Summary

This qualitative study explored the experiences and challenges of chronic pain management among individuals with traumatic spinal cord injury (TSCI) in the Western Cape, South Africa, revealing dissatisfaction with current pain management strategies. The research identified themes of ineffective pharmacological management, a lack of patient education, and unbalanced decision-making between clinicians and patients, leading to patients developing their own coping mechanisms. The study advocates for a holistic, biopsychosocial approach to chronic pain management that includes alternative therapies and a therapeutic alliance between clinicians and patients to improve outcomes and patient satisfaction.

Practical Implications

Enhanced Patient Education

Develop comprehensive educational programs to inform TSCI patients about pain physiology, various pain management strategies, and the importance of a biopsychosocial approach.

Therapeutic Alliance Improvement

Foster stronger therapeutic alliances between clinicians and patients through shared decision-making, active listening, and empathetic communication to create personalized treatment plans.

Integration of Alternative Therapies

Integrate alternative pain therapies such as physiotherapy, exercise, and psychological interventions into standard chronic pain management protocols for TSCI patients.

Study Limitations

  • 1
    The study was conducted in a specific region of South Africa, limiting generalizability.
  • 2
    The sample size of 13 participants may not fully represent the diversity of experiences within the TSCI population.
  • 3
    The reliance on retrospective self-reporting may introduce recall bias.

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