BMC Neurology, 2019 · DOI: https://doi.org/10.1186/s12883-019-1391-6 · Published: July 3, 2019
This study explores how individuals with spinal cord injuries (SCI) and their families navigate the challenges of physical disability. It investigates the strategies they use to regain physical function and independence, including rehabilitation, alternative medicine, and self-reliance efforts. The research involved interviews with SCI patients and their family caregivers to understand their experiences and perspectives on overcoming physical limitations. The study identifies key themes related to rehabilitation approaches, the use of alternative medical treatments, and the pursuit of self-sufficiency. The findings highlight the importance of comprehensive rehabilitation programs, the common use of alternative medicine (often with limited effectiveness), and the desire for self-reliance among individuals with SCI. The study underscores the need for better support and training to help individuals with SCI achieve greater physical independence and improve their quality of life.
Findings can inform the development of community-based services for individuals with SCI and their families.
Highlight the need for formal activities of daily living rehabilitation in an institutional setting following SCI.
Emphasize the importance of home care training programs offered by nurses and therapists to promote self-reliance.