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  4. Toward overcoming physical disability in spinal cord injury: a qualitative inquiry of the experiences of injured individuals and their families

Toward overcoming physical disability in spinal cord injury: a qualitative inquiry of the experiences of injured individuals and their families

BMC Neurology, 2019 · DOI: https://doi.org/10.1186/s12883-019-1391-6 · Published: July 3, 2019

Spinal Cord InjuryRehabilitationResearch Methodology & Design

Simple Explanation

This study explores how individuals with spinal cord injuries (SCI) and their families navigate the challenges of physical disability. It investigates the strategies they use to regain physical function and independence, including rehabilitation, alternative medicine, and self-reliance efforts. The research involved interviews with SCI patients and their family caregivers to understand their experiences and perspectives on overcoming physical limitations. The study identifies key themes related to rehabilitation approaches, the use of alternative medical treatments, and the pursuit of self-sufficiency. The findings highlight the importance of comprehensive rehabilitation programs, the common use of alternative medicine (often with limited effectiveness), and the desire for self-reliance among individuals with SCI. The study underscores the need for better support and training to help individuals with SCI achieve greater physical independence and improve their quality of life.

Study Duration
November 2015 to September 2016
Participants
17 SCI persons and 13 family caregivers
Evidence Level
Not specified

Key Findings

  • 1
    Participants used physiotherapy and occupational therapy as essential for rehabilitation. They also invented simple rehabilitation equipment with family help.
  • 2
    Many participants explored alternative medical methods based on advice from friends and relatives, often spending considerable time and money without significant benefit.
  • 3
    Participants strived for self-reliance, but lacked necessary training at home, making the process longer. Families sometimes innovated rehabilitation tools.

Research Summary

The study investigated physical strategies used by individuals with SCI and their families to overcome physical disability, revealing a main theme of 'towards overcoming physical disability' with three sub-themes. Key strategies included physical rehabilitation through various methods, a tendency towards alternative medical approaches, and active efforts to achieve self-reliance. The research emphasizes the need for healthcare teams and social support to assist individuals with SCI in achieving physical independence and recovery, suggesting further research into the barriers to physical empowerment in Iran.

Practical Implications

Healthcare Policy

Findings can inform the development of community-based services for individuals with SCI and their families.

Rehabilitation Programs

Highlight the need for formal activities of daily living rehabilitation in an institutional setting following SCI.

Training and Support

Emphasize the importance of home care training programs offered by nurses and therapists to promote self-reliance.

Study Limitations

  • 1
    Participants had a diverse range of SCI, which might limit the generalizability of the findings.
  • 2
    The study did not include individuals with SCI living in remote areas with limited access to rehabilitation services.
  • 3
    Not specified

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