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  4. The Austrian Spinal Cord Injury Study: a registry for patients living with a traumatic spinal cord injury

The Austrian Spinal Cord Injury Study: a registry for patients living with a traumatic spinal cord injury

Spinal Cord Series and Cases, 2017 · DOI: https://doi.org/10.1038/s41394-017-0006-y · Published: August 31, 2017

Spinal Cord InjuryTraumaResearch Methodology & Design

Simple Explanation

Traumatic spinal cord injury (tSCI) is a debilitating disease that leads to neurological deficits and often has long-term effects including severe life-long disability. The Austrian Spinal Cord Injury Study (ASCIS) collects longitudinal data on simple forms within a 7-stage follow-up examination timeline. The ASCIS registry was designed to be multi-centered and to include both acute and rehabilitation units.

Study Duration
Not specified
Participants
Over 150 individuals with acute tSCI
Evidence Level
Not specified

Key Findings

  • 1
    The implementation of the ASCIS in 2012 created the first nationwide SCI patient registry in Austria.
  • 2
    ASCIS is uniquely positioned in Austria to capture detailed information from the early acute to the chronic phases of tSCI
  • 3
    Implementation of the ASCIS has established standards for SCI clinical practice at participating ASCIS sites and has already positively influenced patient care.

Research Summary

The Austrian Spinal Cord Injury Study (ASCIS) collects longitudinal data on simple forms within a 7-stage follow-up examination timeline. ASCIS is uniquely positioned in Austria to capture detailed information from the early acute to the chronic phases of tSCI, to provide this information also to bigger and translational settings, and to connect researchers and clinicians to facilitate clinical research on tSCI. The ASCIS database has been designed to track current and longitudinal clinical data for patients with tSCI.

Practical Implications

Improved Patient Outcomes

ASCIS aims to improve patient outcomes by providing a base for research questions and establishing a platform for future clinical trials.

Facilitated Clinical Research

ASCIS facilitates clinical research and evidence-based practice by creating a national registry and connecting clinicians, researchers, and patients.

Enhanced Communication and Continuity

Aligned data collection in trauma and rehabilitation centers has led to substantially enhanced communication and continuity across the care continuum.

Study Limitations

  • 1
    The main limitation of the ASCIS database is that it is not population-based.
  • 2
    Another limitation results from missing and incomplete data.
  • 3
    Patients younger than 15 years of age are not currently included

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