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  4. Participation instruments in persons with spinal cord injury: A narrative review

Participation instruments in persons with spinal cord injury: A narrative review

Medical Journal of the Islamic Republic of Iran, 2020 · DOI: https://doi.org/10.34171/mjiri.34.66 · Published: June 23, 2020

Spinal Cord InjuryRehabilitationResearch Methodology & Design

Simple Explanation

This review focuses on tools used to measure how well people with spinal cord injuries are able to participate in life activities. The review looks at the reliability and validity of these measurement tools, and the different ways they define and assess participation. The goal is to help clinicians and researchers choose the most appropriate tool for evaluating participation based on an individual's specific condition and circumstances.

Study Duration
2000 to March 2019
Participants
Studies including adults with SCI
Evidence Level
Narrative Review

Key Findings

  • 1
    Six instruments were identified: I-APS, USER-P, WHODAS-II, IMPACT-S, IPA, and PM-PAC.
  • 2
    The instruments differ in their underlying structure, domains covered, and types of information gathered, affecting how participation is evaluated.
  • 3
    Responsiveness, the ability to detect changes over time, was not obtained for any of the instruments.

Research Summary

The review examined six instruments used to assess participation in individuals with spinal cord injury, focusing on their measurement properties and applicability. The findings highlight the importance of considering the individual's condition and context when selecting a participation instrument due to the varying concepts and domains covered by each tool. The review also emphasizes the need for future research to incorporate subjective participation and environmental factors in the development and evaluation of participation instruments.

Practical Implications

Instrument Selection

Clinicians and researchers should carefully select participation instruments based on the specific needs and context of individuals with SCI.

Future Research

Future research should focus on incorporating subjective aspects of participation and environmental factors into the development and evaluation of instruments.

Disability Models

Emerging instruments should be based on innovative models of disability and modern measurement technologies to bridge the gap between perceived and recorded participation.

Study Limitations

  • 1
    Lack of certainty in defining participation.
  • 2
    Responsiveness data was missing for all instruments.
  • 3
    Lack of knowledge and information about environmental factors.

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