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  4. Central Recruitment: A process for engaging and recruiting individuals with spinal cord injury/disease in research at Toronto Rehabilitation Institute

Central Recruitment: A process for engaging and recruiting individuals with spinal cord injury/disease in research at Toronto Rehabilitation Institute

The Journal of Spinal Cord Medicine, 2021 · DOI: 10.1080/10790268.2021.1970898 · Published: January 1, 2021

Spinal Cord InjuryRehabilitationResearch Methodology & Design

Simple Explanation

The study addresses the problem of insufficient recruitment in SCI/D research, which limits statistical power. They implemented a Central Recruitment (CR) process to streamline recruitment and consent for inpatients with SCI/D. The CR process involves the inpatient’s nurse affirming suitability for research approach based on fluency, cognition and health stability. Then, a patient research liaison (PRL) provides information, screens for eligibility, and completes the consent process. The CR process adhered to ethical procedures and reduced the burden of having multiple researchers approach each individual inpatient regarding research participation, with high consent rates for low-risk studies.

Study Duration
5.5 Years
Participants
1,561 inpatients with SCI/D
Evidence Level
Not specified

Key Findings

  • 1
    80% of screened inpatients were deemed suitable for the PRL approach, demonstrating the effectiveness of initial screening.
  • 2
    80% of suitable inpatients agreed to discuss research opportunities, indicating a high level of willingness to engage with research.
  • 3
    46% of those who discussed research consented to participate in one or more studies, suggesting a reasonable conversion rate from discussion to participation.

Research Summary

The Central Recruitment (CR) process was developed to address low recruitment rates in SCI/D research by streamlining participant recruitment and ensuring ethical standards. The process involves a nurse assessing suitability, followed by a Patient Research Liaison (PRL) who serves as a single point of contact for research information and consent. The study found that the CR process was effective in maximizing research participation, reducing inpatient burden, and providing stable research infrastructure.

Practical Implications

Improved Recruitment Efficiency

The Central Recruitment model demonstrates a feasible and effective strategy for improving patient recruitment in rehabilitation research, particularly for SCI/D populations.

Ethical Research Practices

The emphasis on ethical principles and reduction of patient burden can serve as a template for other research institutions aiming to enhance recruitment processes.

Scalability Potential

The success of the pilot study suggests that the CR process can be scaled up to include more complex studies and extended to other clinical populations and settings.

Study Limitations

  • 1
    Exclusion of non-English speaking inpatients.
  • 2
    Potential selection bias against re-admitted patients.
  • 3
    Inpatient suitability assessments may have occurred too soon post-admission.

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