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  4. A Systematic Review of the Scientific Literature for Rehabilitation/Habilitation Among Individuals With Pediatric-Onset Spinal Cord Injury

A Systematic Review of the Scientific Literature for Rehabilitation/Habilitation Among Individuals With Pediatric-Onset Spinal Cord Injury

Top Spinal Cord Inj Rehabil, 2022 · DOI: 10.46292/sci21-00046 · Published: July 1, 2022

Spinal Cord InjuryPediatricsResearch Methodology & Design

Simple Explanation

Pediatric SCI is a rare and devastating condition leading to lifelong neurological problems impacting the child and family. Management requires specific approaches centered on the child's physiology and development, considering both rehabilitation and habilitation. The review highlights a need to examine the research evidence to inform medical care, rehabilitation and identify areas where scientific evidence is lacking to inform research.

Study Duration
1974 to December 2020
Participants
176 studies (19,678 unique individuals)
Evidence Level
Systematic Review, Level 4-5 evidence

Key Findings

  • 1
    The evidence for pediatric-onset SCI rehabilitation/habilitation is extremely limited; nearly all studies (98%) are level 4-5 evidence.
  • 2
    The majority of studies examined outcomes that were related to the ICF category Body Structure and Function, specifically in the areas of depression and anxiety (n = 20; 11.4%).
  • 3
    Commonly studied areas within the ICF domain Participation, the commonly studied areas were quality of life (n = 17; 9.7%), play and participation (n = 12; 6.8%), and life satisfaction (n = 12; 6.8%).

Research Summary

This systematic review shows a wide variety of topics studied in pediatric-onset SCI rehabilitation/habilitation, but the extent is severely limited with significant gaps. Among 176 articles, only one study was rated as level one evidence, while nearly 98% were level 4 or 5, indicating a need for higher-quality research. The review identifies knowledge gaps in common medical and musculoskeletal complications, and a need to fully evaluate ICF Activity and Participation domains.

Practical Implications

Clinical Practice

Clinicians should be aware of the limited evidence base when making decisions about rehabilitation/habilitation interventions for pediatric-onset SCI.

Research

Future research should focus on conducting high-quality, multicenter studies with well-defined patient populations and standardized outcome measures.

Policy

Advocacy is needed to increase funding for research and development of effective interventions for pediatric-onset SCI.

Study Limitations

  • 1
    Only quantitative studies published in English were included.
  • 2
    A grey literature search was not conducted.
  • 3
    Studies including caregivers/parents but not the SCI subjects were excluded.

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