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  4. Spinal cord injuries and bowel stomas: timing and satisfaction with stoma formation and alterations in quality of life

Spinal cord injuries and bowel stomas: timing and satisfaction with stoma formation and alterations in quality of life

Spinal Cord Series and Cases, 2021 · DOI: https://doi.org/10.1038/s41394-020-00377-z · Published: January 1, 2021

Spinal Cord InjuryParticipationGastroenterology

Simple Explanation

This study investigates how satisfied individuals with spinal cord injuries (SCI) are with their bowel stomas, and how the timing of stoma formation affects their quality of life. The research also explores side effects like diversion colitis and changes in overall well-being after getting a stoma. The findings suggest that most participants experienced improved quality of life after stoma formation and wished they had received their stoma earlier.

Study Duration
Not specified
Participants
23 participants with traumatic or non-traumatic SCI and bowel stoma
Evidence Level
Cross-sectional study

Key Findings

  • 1
    Most participants with SCI were satisfied with their bowel stomas (96%).
  • 2
    A significant majority (83%) felt their stoma was placed too late or far too late.
  • 3
    Most participants reported improvements in quality of life across various domains after the stoma procedure.

Research Summary

This cross-sectional study explored the satisfaction and quality of life (QOL) changes in individuals with spinal cord injury (SCI) who have undergone bowel stoma formation. The study found that the majority of participants were satisfied with their stoma, experienced improvements in QOL, and felt the stoma was placed too late. The researchers suggest early and extensive conversations about bowel management options, including stoma formation, should occur after SCI.

Practical Implications

Informed Decision-Making

Early and comprehensive discussions about bowel management, including stoma formation, are crucial for individuals with SCI.

Timing of Stoma Formation

Consider stoma formation earlier in the treatment process for individuals with severe NBD.

Multidisciplinary Approach

Collaboration between rehabilitation physicians, surgeons, and stoma nurses is essential for optimal patient care.

Study Limitations

  • 1
    Small sample size
  • 2
    Use of a modified, unvalidated version of the NBD questionnaire
  • 3
    Reliance on self-reported data

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